Last December we held a Facebook contest and you voted for your favorite Research Center to get a $10,000 CDH Research Grant. We were able to give away 2 grants for $10,000 each thanks to all your help selling 50/50 CDH Raffle tickets and thanks to 1 determined family who raised $10,000 in memory of their daughter! $10,000 went to The Center for Fetal Diagnosis and Treatment at CHOP and $10,000 went to DHREAMS Research Study (Congenital Diaphragmatic Hernia).
THIS YEAR:
Our goal is to sell 1000 more 50/50 CDH Raffle tickets to raise another $10,000 and to work together to raise an additional $15,000 through fundraisers and firstgiving pages.
Think we can do it? Want to give $25,000 in CDH Research Grants this December? We sure do!!!
HOW YOU CAN HELP:
1. Purchase tickets at http://2014cdhresearchraffleeventbrite.com/
2. Sell paper tickets by e-mailing us your name and address to research@cdhsupport.org
3. Hold a fundraiser by talking to our Fundraising Coordinator Melissa Larrison at mlarrison@cherubs-cdh.org
4. Create a Firstgiving Page in honor/memory of your cherub at https://www.firstgiving.com/10125/cherubs-2013-cdh-research-fund-drive
It's not hard to help! We had several families sell over 50 tickets each and we have had 2 families raise over $10,000 on Firstgiving and one who raised $25,000! If all of us work together on this we can far exceed our goal and raise a lot of money for CDH Research!
For more information:
CHERUBS - Congenital Diaphragmatic Hernia (CDH): CDH Research
Showing posts with label research. Show all posts
Showing posts with label research. Show all posts
Tuesday, August 20, 2013
Monday, June 3, 2013
President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam
This week CHERUBS President and Founder, Dawn Torrence Williamson, will be speaking to CDH surgeons and researchers at the International CDH Workshop at Sophia Children's Hospital in Rotterdam, Holland. An event to showcase the latest in Congenital Diaphragmatic Hernia Research and results from the CDH Study Group, this is a wonderful opportunity for the world's largest CDH charity to share our information and services and to learn how we can better work with researchers worldwide
CHERUBS - Congenital Diaphragmatic Hernia (CDH): President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam
CHERUBS - Congenital Diaphragmatic Hernia (CDH): President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam
Tuesday, July 24, 2012
Huge Day for CDH Awareness!!
You may or may not have heard but on July 18, Senator Jefferson Sessions (R-AL) formally introduced the Congenital Diaphragmatic Hernia Research Bill, co-sponsored by Senator Benjamin Cardin (D-MD). This is the $50,000,000 medical research bill that CHERUBS has been talking about for some time now.
We have a long road to try to push this bill through, but just so everyone is aware....CHERUBS receives no money if this bill becomes law. This bill would just appropriate funds that medical institutions can petition for to help fund research. This will help the entire CDH community around the world. This is a great thing for all families currently affected and those who will be affected by CDH in the future.
If you think $50,000,000 is a lot of money, let me put it into perspective with some "quick and dirty" math:
1600 babies affected by CDH per year in the US
Let's say only 50% have extended stays (over 1 month) in the NICU = 800 babies
An extended stay can easily cost $1,000,000 (and that is being extremely conservative)
This would total $800,000,000 in one year...and this is an extremely low number and doesn't account for any of the other 800 babies diagnosed with CDH in a given year. We all know that even a baby that unfortunately looses his/her battle with CDH can fight for 1-2 months and can incur substantial medical bills.
This cost doesn't take into consideration any of the non-medical bills and expenses associated with an extended stay of a family member in the hospital. So spending $50,000,000 on research that could substantially reduce the $800,000,000 in medical bills in one year alone...seems like a pretty good trade-off to me.
So what's next? You can follow the progress of the bill as it travels through committee, etc.
More importantly, you can write you Congressmen. Let them know that you support this bill. That it is important to you and your family. Here's a link to help you look up your Congressmen along with a letter template that you can use to craft a letter to send/email to you senators and representative. You can even write letters to all the members of the respective committees reviewing the bill to show your support.
This is a huge opportunity for us to not only raise awareness of CDH but also finally get much needed funding to understand the cause (and hopefully prevent it in the future).
We have a long road to try to push this bill through, but just so everyone is aware....CHERUBS receives no money if this bill becomes law. This bill would just appropriate funds that medical institutions can petition for to help fund research. This will help the entire CDH community around the world. This is a great thing for all families currently affected and those who will be affected by CDH in the future.
If you think $50,000,000 is a lot of money, let me put it into perspective with some "quick and dirty" math:
1600 babies affected by CDH per year in the US
Let's say only 50% have extended stays (over 1 month) in the NICU = 800 babies
An extended stay can easily cost $1,000,000 (and that is being extremely conservative)
This would total $800,000,000 in one year...and this is an extremely low number and doesn't account for any of the other 800 babies diagnosed with CDH in a given year. We all know that even a baby that unfortunately looses his/her battle with CDH can fight for 1-2 months and can incur substantial medical bills.
This cost doesn't take into consideration any of the non-medical bills and expenses associated with an extended stay of a family member in the hospital. So spending $50,000,000 on research that could substantially reduce the $800,000,000 in medical bills in one year alone...seems like a pretty good trade-off to me.
So what's next? You can follow the progress of the bill as it travels through committee, etc.
More importantly, you can write you Congressmen. Let them know that you support this bill. That it is important to you and your family. Here's a link to help you look up your Congressmen along with a letter template that you can use to craft a letter to send/email to you senators and representative. You can even write letters to all the members of the respective committees reviewing the bill to show your support.
This is a huge opportunity for us to not only raise awareness of CDH but also finally get much needed funding to understand the cause (and hopefully prevent it in the future).
Wednesday, June 20, 2012
Did you know??
Did you know that the next CHERUBS Illinois get-together is already on the calendar?
- July 14 at Ravinia Park in Highland Park, Illinois for a kids concert. Ralph's World is playing. I've seen him a couple times now...and the kids will love it. Tickets are only $5 for lawn seats. If you've never been to Ravinia, it's well worth it. Here's the Facebook event with more information and a video clip below:
- Live in Michigan, Indiana, or Wisconsin?? We'd love for you to join us too!
Did you know that CHERUBS is selling raffle tickets to raise money for CDH research?
- Tickets are only $20 and the winner will receive half the money raised.
- Our goal is to sell 1,000 tickets. That means the winner will receive $10,000 with the remaining $10,000 being donated to a hospital for additional CDH research
- You can reach out to me to purchase tickets or buy them direct by following this link: http://cdhraffle.eventbrite.com/
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