tag:blogger.com,1999:blog-27956420002064420342024-03-05T13:26:53.689-06:00CHERUBS Illinois - Congenital Diaphragmatic HerniaThe Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. CHERUBS is the original CDH non-profit organization founded in 1995 to help families and medical care providers of children born with CDH. Unknownnoreply@blogger.comBlogger42125tag:blogger.com,1999:blog-2795642000206442034.post-46095089215955020312013-12-02T00:07:00.000-06:002013-12-02T23:29:06.834-06:00#GivingTuesday is December 3: How are you planning to give back??<div class="separator" style="clear: both; text-align: center;">
<a href="http://www.cherubs-cdh.org/fundraising/contribute" style="margin-left: 1em; margin-right: 1em; text-align: left;" target="_blank"><img alt="Think CHERUBS this #GivingTuesday" border="0" height="185" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGKW2jjgjzwhjFyUx5QqN2WmVnBP4r3LUT19Rp66d1kLCNeYqhCWnRg8uLNSwG222qRuuICpBqAX3im61q3mo6JlybgZUWRKf3CuPtZvjYapYxaynRYRjFtjSpYx0PssCmWn24H4ODatI/s400/1464741_10151749621442006_718965897_n.jpg" title="" width="400" /></a></div>
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Just in case you haven't heard all the fuss over the last few weeks, <a href="https://www.facebook.com/GivingTuesday" target="_blank">#GivingTuesday</a> is this Tuesday, December 3. What is <a href="https://www.facebook.com/events/411917568937167/" target="_blank">#GivingTuesday</a>?<br />
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It is a day created to GIVE BACK. It's that simple. We just spent a long weekend focusing on how thankful we are for what we have followed by a couple intense days of shopping. 'Tis the season for giving. So why not give to a charity that has touched us all so deeply. If you give in any way on December 3, then you have participated in <a href="http://www.cherubs-cdh.org/fundraising/contribute" target="_blank">#GivingTuesday</a>.<br />
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<a href="http://www.cherubs-cdh.org/fundraising/contribute" target="_blank"><img alt="consider giving to CHERUBS this #GivingTuesday" border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5MuP2jaemNu0bR5N97E1wlEGG5dzDJTq6u53lsQnFWhFuXpowsVD5wmtAd0uWWOe3EVobSmGUMfWczPj2FDv3-1PIeCrC-V07bRXdVD-bqBJUMUcM9F2mzWq833NUGBOcb09NP0ykil8/s200/1455958_559750274103683_1123037713_n.jpg" title="" width="200" /></a></div>
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However, for me, <a href="http://www.cherubs-cdh.org/" target="_blank">CHERUBS</a> is at the top of the list of charities to consider this 2nd annual <a href="http://www.cherubs-cdh.org/" target="_blank">#GivingTuesday</a>. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8Rex37RB-2JPwTAMRTQbPCnDlCCQ8QF_HB9uXiaY1WGby3zokKIvy8CjO7P2O3D_pS-jPvTcAV7pItlwKec6Rd2lHmxZOC4f-CbELxf0BB1FBopD8X7L9meoZ4PKijL4zxeJ_i3_ANgc/s1600/1458678_559654437446600_816874463_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="247" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8Rex37RB-2JPwTAMRTQbPCnDlCCQ8QF_HB9uXiaY1WGby3zokKIvy8CjO7P2O3D_pS-jPvTcAV7pItlwKec6Rd2lHmxZOC4f-CbELxf0BB1FBopD8X7L9meoZ4PKijL4zxeJ_i3_ANgc/s320/1458678_559654437446600_816874463_n.jpg" width="320" /></a></div>
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So how can you give to <a href="https://www.facebook.com/cdhsupport" target="_blank">CHERUBS</a>?? Here's a quick list of ways you can donate:<br />
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<ol>
<li>Give directly to <a href="http://www.cherubs-cdh.org/fundraising/contribute" target="_blank">CHERUBS</a> via the <a href="http://www.cherubs-cdh.org/fundraising/contribute" target="_blank">webpage</a>.</li>
<li>Donate via the CHERUBS #GivingTuesday <a href="http://www.firstgiving.com/10125/givingtuesday" target="_blank">FirstGiving page</a></li>
<li>Support National Children's Memorial Day and <a href="http://www.cherubs-cdh.org/awareness/2013-07-29-20-06-27#!/~/product/category=7064070&id=30013960" target="_blank">light a virtual candle for CDH</a> babies gone too soon for only $5 per candle.</li>
<li>Purchase the 1st ever <a href="http://illinoischerubs.blogspot.com/2013/08/cherubs-fundraiser-first-ever-original.html" target="_blank">CHERUBS lullaby</a> for only $1.89 (or more). </li>
<li>Shop on <a href="http://www.cherubs-cdh.org/about/news/50-holiday-shop-for-cherubs" target="_blank">Amazon</a>, <a href="http://www.cherubs-cdh.org/about/news/50-holiday-shop-for-cherubs" target="_blank">Ebay</a>, or <a href="http://www.cherubs-cdh.org/about/news/50-holiday-shop-for-cherubs" target="_blank">Goodsearch</a>.</li>
<li>Participate in the <a href="http://www.etsy.com/shop/PreciousAngelsMC" target="_blank">CDH Jewelry fundraiser</a> on <a href="http://www.etsy.com/shop/PreciousAngelsMC" target="_blank">Etsy </a>from our Oregon State Rep.</li>
<li>Shop the <a href="http://www.cherubs-cdh.org/awareness/2013-07-29-20-06-27#!/~/category/id=0&inview=category6338082&offset=0&sort=normal" target="_blank">CHERUBS CDH Awareness Shop</a></li>
<li>Purchase a <a href="http://www.cafepress.com/cherubs.1204502046" target="_blank">CDH Awareness 2014 calendar</a>.</li>
<li>Play the <a href="http://www.giveaheart.org/game.php" target="_blank">Give a Heart game</a> on your computer or mobile device and donate your hearts to <a href="http://www.giveaheart.org/game.php" target="_blank">CHERUBS</a>.</li>
<li>Sign up to donate a tweet via <a href="http://justcoz.org/cherubs" target="_blank">JustCoz to CHERUBS</a>.</li>
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and one more bonus way to donate: <br />
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11. Check out <a href="http://www.firstgiving.com/fundraiser/freedom-green/cherubs-2013-cdh-research-fund-drive" target="_blank">Kylee's 13th Birthday fundraiser for CDH Research</a><br />
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This is definitely not an exhaustive list, but it's a good start.<br />
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Happy Donating!</div>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-58773167709642520772013-10-08T01:32:00.002-05:002019-11-11T07:29:17.179-06:00A Fighter's Lullaby - The words you have been waiting forSome of you have asked about the words to this amazing lullaby after listening to it a couple times. First of all, thank you for your support in this CDH Research fundraiser. <br />
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Here are the words to this beautiful song written by <a href="http://rosscrean.com/" target="_blank">Ross Crean</a> with those affected by CDH in mind:<br />
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"<b>A Fighter's Lullaby</b>"<br />
<div style="-webkit-text-stroke-width: 0px; background-color: white; color: #333333; font-size-adjust: none; font-stretch: normal; font: 12.72px/15.45px "lucida grande", tahoma, verdana, arial, sans-serif; letter-spacing: normal; margin: 10px 0px 0px; text-align: left; text-indent: 0px; text-transform: none; white-space: pre-wrap; word-spacing: 0px;">
It's all clear now, little one,<br />
Sleep away.<br />
No more fears and disturbia<br />
Will be here to stay.</div>
<div style="-webkit-text-stroke-width: 0px; background-color: white; color: #333333; font-size-adjust: none; font-stretch: normal; font: 12.72px/15.45px "lucida grande", tahoma, verdana, arial, sans-serif; letter-spacing: normal; margin: 10px 0px 0px; text-align: left; text-indent: 0px; text-transform: none; white-space: pre-wrap; word-spacing: 0px;">
Let the sky full of stars<br />
Blanket the darkness that gets in your way.<br />
Just hold on to the promises<br />
That tell you to there's soon to be<br />
Much brighter days.</div>
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Don't carry your shield and sword<br />
Through those reveries.<br />
Get on the boat, leave them on the shore<br />
While you sail to dream.</div>
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Let the sky full of stars<br />
Blanket the darkness that gets in your way.<br />
Just hold on to the promises<br />
That tell you to there's soon to be<br />
Much brighter days.</div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-62778978145958026982013-08-29T23:45:00.000-05:002013-08-30T15:14:58.916-05:00CHERUBS Fundraiser - First Ever Original Lullaby Written Just for CHERUBS!<div style="text-align: center;">
<iframe allowfullscreen="" frameborder="0" height="315" src="//www.youtube.com/embed/s1n4n44yDd8" width="420"></iframe> </div>
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For the first time, <a href="http://www.cherubs-cdh.org/" target="_blank">CHERUBS</a> has a lullaby written with our cherubs in mind. A good friend of mine offered to compose and perform an original lullaby for CHERUBS. <br />
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The lullaby is amazing and is called "A Fighter's Lullaby". This is the official announcement of the first ever "A Fighter's Lullaby" CHERUBS fundraiser. <br />
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You can purchase the song for only <b>$1.89</b>. However, you have the opportunity to "pay" more if you would like just by increasing the purchase price at time of checkout. <br />
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After PayPal processing fees, all money raised will be donated to either the Family Support Fund at CHERUBS or CDH Research or both depending on how much we raise.<br />
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Here's is a sample of this <a href="https://dl.dropboxusercontent.com/u/47697424/A%20Fighter%27s%20Lullaby_preview.mp3" target="_blank">amazing lullaby</a> by <a href="http://www.rosscrean.com/" target="_blank">Ross Crean</a> (a local Chicago musician).<br />
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<a class="ec_ejc_thkbx" href="https://www.e-junkie.com/ecom/gb.php?c=cart&i=1274395&cl=257054&ejc=2" onclick="javascript:return EJEJC_lc(this);" target="ej_ejc"><img alt="Add to Cart" border="0" src="http://www.e-junkie.com/ej/ej_add_to_cart.gif" /></a> <== click here to purchase/donate<br />
<a href="http://www.e-junkie.com/" style="font-size: 15px; line-height: 21px;" target="_blank">Shopping Cart by E-junkie</a><br />
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Here's a short note from the composer/artist :<br />
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I first became aware of <a href="http://illinoischerubs.blogspot.com/p/what-is-cdh.html" target="_blank">CDH</a> when my friends <a href="http://www.rockscarlove.com/death-please-do-not-make-me-give-you-my-son/" target="_blank">Neil and Amy Rubenstein's</a> son, Aidan, was diagnosed with the birth defect. Like a great many people, I had no knowledge that something like CDH existed until it happened to someone I knew. Raising awareness is so crucial to helping research, detect, and even one day prevent this condition.<br />
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I wrote "A Fighter's Lullaby" with two intentions. ONE, to compose a lullaby to raise money for the CHERUBS organization, and TWO, to send a message of love and support for those heroes who deal every day with the effects of CDH. It is my hope that this song will serve as a message of solace and encouragement, not only to the children who are diagnosed, but also to the parents who soldier bravely through the losses and hardships that it brings. To those who have lost children to CDH, and to those who continue to fight it: may this song be your light in the present darkness, and remind you that even the most difficult struggle always reaches an end. Stay strong!<br />
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Copyright 2013 Ross Crean/Knight & Thorne Music/ASCAP. All Rights Reserved.<br />
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Interested in "purchasing" this song? Just use the Add to Cart button below. And remember you are more than welcome to donate <b>more than $1.89</b> for the lullaby. <br />
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<a class="ec_ejc_thkbx" href="https://www.e-junkie.com/ecom/gb.php?c=cart&i=1274395&cl=257054&ejc=2" onclick="javascript:return EJEJC_lc(this);" target="ej_ejc"><img alt="Add to Cart" border="0" src="http://www.e-junkie.com/ej/ej_add_to_cart.gif" /></a>
<a class="ec_ejc_thkbx" href="https://www.e-junkie.com/ecom/gb.php?c=cart&cl=257054&ejc=2" onclick="javascript:return EJEJC_lc(this);" target="ej_ejc"><img alt="View Cart" border="0" src="http://www.e-junkie.com/ej/ej_view_cart.gif" /></a>
<script language="javascript" type="text/javascript">
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function EJEJC_lc(th) { return false; }
// -->
</script>
<script src="http://www.e-junkie.com/ecom/box.js" type="text/javascript"></script>
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<a href="http://www.e-junkie.com/" style="font-size: 15px; line-height: 21px;" target="_blank">Shopping Cart by E-junkie</a><br />
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Once you purchase the song, you will have the opportunity to download it right away. You should also receive a link via email with instruction for downloading.Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-67839023593273615932013-08-20T00:05:00.001-05:002013-08-20T00:08:01.768-05:00CHERUBS Raffle for Research<span style="background-color: white;"><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">Last December we held a Facebook contest and you voted for your favorite Research Center to get a $10,000 CDH Research Grant. We were able to give away 2 grants for $10,000 each thanks to all your help selling 50/50 CDH Raffle tickets and thanks to 1 determined family who raised $10,000 in memory of their daughter! $10,000 went to </span><a data-hovercard="/ajax/hovercard/page.php?id=136817849694290&extragetparams=%7B%22directed_target_id%22%3A0%7D" href="https://www.facebook.com/TheCenterforFetalDiagnosisandTreatmentatCHOP?directed_target_id=0" style="color: #17488a; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">The Center for Fetal Diagnosis and Treatment at <span class="text_exposed_show">CHOP</span></a><span class="text_exposed_show" style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"> and $10,000 went to <a data-hovercard="/ajax/hovercard/page.php?id=181478347688&extragetparams=%7B%22directed_target_id%22%3A0%7D" href="https://www.facebook.com/pages/DHREAMS-Research-Study-Congenital-Diaphragmatic-Hernia/181478347688?directed_target_id=0" style="color: #17488a;">DHREAMS Research Study (Congenital Diaphragmatic Hernia)</a>.</span></span><br />
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<span style="background-color: white;"><span style="color: mediumblue; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"><strong>THIS YEAR:</strong></span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><strong style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">Our goal is to sell 1000 more 50/50 CDH Raffle tickets to raise another $10,000 and to work together to raise an additional $15,000 through fundraisers and firstgiving pages. </strong><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">Think we can do it? Want to give $25,000 in CDH Research Grants this December? We sure do!!!</span></span><br />
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<span style="background-color: white;"><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"><span style="color: blue;"><strong>HOW YOU CAN HELP:</strong></span></span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">1. Purchase tickets at </span><a href="http://www.facebook.com/l.php?u=http%3A%2F%2F2014cdhresearchraffleeventbrite.com%2F&h=LAQGvDdYv&s=1" rel="nofollow nofollow" style="color: #17488a; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" target="_blank">http://2014cdhresearchraffleeventbrite.com/</a><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">2. Sell paper tickets by e-mailing us your name and address to research@cdhsupport.org</span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">3. Hold a fundraiser by talking to our Fundraising Coordinator Melissa Larrison at mlarrison@cherubs-cdh.org</span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">4. Create a Firstgiving Page in honor/memory of your cherub at </span><a href="https://www.firstgiving.com/10125/cherubs-2013-cdh-research-fund-drive" rel="nofollow nofollow" style="color: #17488a; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" target="_blank">https://www.firstgiving.com/10125/cherubs-2013-cdh-research-fund-drive</a><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;">It's not hard to help! We had several families sell over 50 tickets each and we have had 2 families raise over $10,000 on Firstgiving and one who raised $25,000! If all of us work together on this we can far exceed our goal and raise a lot of money for CDH Research!</span></span><br />
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For more information:<br />
<a href="http://cdhsupport.blogspot.com/2013/07/cdh-research.html">CHERUBS - Congenital Diaphragmatic Hernia (CDH): CDH Research</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-52963300000566850922013-06-20T01:14:00.001-05:002013-06-20T01:14:41.681-05:00Groupon Grassroots Update & Other Breaking News!We did amazing with the <a href="http://www.groupon.com/deals/cherubs" target="_blank">Groupon Grassroots fundraiser</a>! Because of your support, we raised over $3,300 towards the <a href="http://www.cherubs-cdh.org/hope/" target="_blank">HOPE Totebag program</a>. 100% of the money raised goes directly to <a href="http://www.cherubs-cdh.org/" target="_blank">CHERUBS </a>for this important program. Thank you for making this fundraiser (the first of it's kind for CHERUBS) such a success.<br />
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Did you know that CHERUBS is offering a <a href="http://cdhsupport.blogspot.com/2013/05/cherubs-2013-cdh-scholarships.html" target="_blank">scholarship towards college for graduating seniors</a>? There's still time to apply. The deadline is June 24th, so get your application in soon!<br />
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Did you watch the <a href="http://wgntv.com/2013/06/17/wgn-cover-story/" target="_blank">WGN news</a> on Monday, June 17th? The <a href="http://illinoischerubs.blogspot.com/p/illinois-reps.html" target="_blank">CHERUBS IL/WI Representative</a> and his family were featured in a <a href="http://wgntv.com/2013/06/17/wgn-cover-story/" target="_blank">cover story</a> which talked about CDH, CHERUBS, and their 2nd child (due in September) also diagnosed with CDH.<br />
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<iframe frameborder="0" height="338" marginheight="0" marginwidth="0" scrolling="no" src="http://embed.newsinc.com/Single/iframe.html?WID=1&VID=24890046&freewheel=69016&sitesection=wgn_coverstory&width=601&height=338" width="601"></iframe>
Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-56046335831780237522013-06-05T00:32:00.001-05:002013-06-05T00:32:11.063-05:00We're in the home stretch of the Groupon Grassroots Totebag FundraiserJust in case you haven't heard, <a href="http://www.facebook.com/cdhsupport" target="_blank">CHERUBS</a> has partnered with <a href="https://twitter.com/GrpnGrassroots" target="_blank">Groupon Grassroots</a> to launch a fundraiser to help support the <a href="http://www.cherubs-cdh.org/hope/" target="_blank">HOPE Totebag program</a>. These totebags are sent to CHERUBS members who are expecting a child with CDH or with one currently in the NICU. It includes lots of items and information to help with an extended hospital stay (which unfortunately is very common among children who have CDH). <br />
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<a href="http://www.groupon.com/deals/cherubs" target="_blank"><img border="0" height="194" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvAcgVfvHhsf3kN5W-TTOgdBgjN_7n6rsansHPs0d0Rex7y16rhbpq5pqkt4wTU1sMvV6daSOKd0yyLb4E03Nrrv_UMUVkeb_DTA-hCxqVf2yF-Yg_gNG5N0UTIp5MRWQWfvD7CTq68U0/s320/groupon1.jpg" width="320" /></a></div>
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This <a href="http://www.groupon.com/deals/cherubs" target="_blank">fundraiser</a> launched last Thursday (5/30) and runs until Sunday, June 9. The awesome thing about this fundraiser is that Groupon actually absorbs all fees and transactions costs, so 100% of the money raised goes directly to CHERUBS. <b>100%!!</b><br />
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<a href="http://www.groupon.com/deals/cherubs" target="_blank"><img border="0" height="194" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYnrVlEl8GedDwtizuaQuIma9RruI1nYCc1CrJpOkksA71NNzQYdSEaKbak_HB-1CPW6DpIajL9Ofc3mGvc83XSmtmBHrBF7fCPwmQGEWx0y4mDnpFu-IeScfL8vppDu4RFj6rfwX8J3g/s320/groupon2.jpg" width="320" /></a></div>
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Donations can be made in increments of $10 with every 5 donations covering the cost of one bag. There aren't many easier ways to donate to such a worthwhile cause where 100% of the money raised goes to the chosen charity. <br />
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Why am I so passionate about this fundraiser? Here's a blog post I wrote for my friends at <a href="http://www.rockscarlove.com/" target="_blank">RockScar Love</a> called "<a href="http://www.rockscarlove.com/death-you-messed-with-the-wrong-dad-again/" target="_blank">Death, you messed with the wrong dad AGAIN</a>"<br />
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Please consider making a <a href="http://www.groupon.com/deals/cherubs" target="_blank">donation</a>. Thank you very much.<br />
<br />
Here is the link to donate: <a href="http://www.groupon.com/deals/cherubs">http://www.groupon.com/deals/cherubs</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-17458976167065490872013-06-03T23:56:00.001-05:002013-06-03T23:57:26.379-05:00President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam<span style="font-family: "Calibri","sans-serif"; font-size: 11.0pt; line-height: 115%; mso-ansi-language: EN-US; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-language: AR-SA; mso-bidi-theme-font: minor-bidi; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin; mso-hansi-theme-font: minor-latin;">This week CHERUBS President and Founder, Dawn Torrence Williamson, will be speaking to CDH surgeons and researchers at the International CDH Workshop at Sophia Children's Hospital in Rotterdam, Holland. An event to showcase the latest in Congenital Diaphragmatic Hernia Research and results from the CDH Study Group, this is a wonderful opportunity for the world's largest CDH charity to share our information and services and to learn how we can better work with researchers worldwide</span><br />
<br />
<br />
<a href="http://cdhsupport.blogspot.com/2013/06/president-dawn-torrence-williamson.html#links">CHERUBS - Congenital Diaphragmatic Hernia (CDH): President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-56814552355831674052013-05-23T00:38:00.001-05:002013-05-23T00:39:47.706-05:00CHERUBS 2013 CDH Scholarships<br />
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<b>Two $1000 scholarships will be awarded this year in memory of cherub Oz Kidd-Ward.</b><o:p></o:p></div>
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Download the application at <a href="http://www.cherubs-cdh.org/CHERUBS2013ScholarshipApplication.pdf">http://www.cherubs-cdh.org/CHERUBS2013ScholarshipApplication.pdf</a><o:p></o:p></div>
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Applications are accepted each year between March 1 and June 24th and must be accompanied by the following applicable items: <o:p></o:p></div>
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· High school transcript(s) or Recent Report Card with GPA <o:p></o:p></div>
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· College Acceptance Letter(s)<o:p></o:p></div>
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· Two letters of recommendation. Letters must be dated within the last three months.<o:p></o:p></div>
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Rewards are granted on merit without regard to race, religion, creed, sex, national origin or disability status. All applicants must be a current member of CHERUBS or have a parent that is a registered member of CHERUBS. The CHERUBS CDH Scholarship is not available to children of members on the CHERUBS Executive Board or the CHERUBS Parent Advisory Board (CPAB). Winner(s) will be announced at the International Congenital Diaphragmatic Hernia Conference on Wednesday, July 10, 2013, in Boston, MA</div>
<br />
<br />
<br />
For more information:<br />
<a href="http://cdhsupport.blogspot.com/2013/05/cherubs-2013-cdh-scholarships.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+Cherubs-CongenitalDiaphragmaticHerniacdh+%28CHERUBS+-+Congenital+Diaphragmatic+Hernia+%28CDH%29%29">CHERUBS - Congenital Diaphragmatic Hernia (CDH): CHERUBS 2013 CDH Scholarships</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-77497843586293536022013-05-17T23:24:00.000-05:002013-05-23T00:35:22.544-05:00CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative<div class="separator" style="clear: both; text-align: center;">
<a href="https://www.facebook.com/events/154421301406106/" target="_blank"><img border="0" height="191" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdhyCRSfz_H150nkkpmO-Tj3fXXbk1WLPSC88tuQ0zHGmP3v5BLd8kzbhOojYvnfZPCNGVwLBneiFB8rtg2jS8NfjyarKBy7NHmfuWSluXdZUp3T-rTY9XeOxIMzPi1_MB37sH_OZIR0E/s200/CHERUBSLogo.png" width="200" /></a></div>
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<b><span style="font-family: "Calibri","sans-serif"; font-size: 10.0pt; mso-bidi-font-family: Arial;">CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative<o:p></o:p></span></b></div>
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<b><span style="font-family: "Calibri","sans-serif"; font-size: 10.0pt; mso-bidi-font-family: Arial;">to provide totebag care packages to families either expecting a child
with a congenital diaphragmatic hernia (CDH) or currently have a child in the
hospital with CDH.<o:p></o:p></span></b></div>
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<span style="font-family: "Calibri","sans-serif";">Chicago, IL
– Today CHERUBS and Groupon Grassroots (</span><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"><a href="http://grassroots.groupon.com/">http://grassroots.groupon.com</a></span><span style="font-family: "Calibri","sans-serif";">), the philanthropic arm of Groupon,
announce the launch of a local campaign to raise much needed funds to support
the HOPE Totebag project.</span><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"><o:p></o:p></span></div>
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<span style="font-family: "Calibri","sans-serif";">The HOPE
Totebag campaign will be available on the Chicago, IL Groupon Grassroots page
beginning on 30, May and running through 9, June. Utilizing Groupon Grassroots’
collective action model, Groupon subscribers can pledge support for the Hope
Totebag initiative in increments of $10, with each $50 covering the cost of the
totebag care package for 1 family. <o:p></o:p></span></div>
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<span style="font-family: "Calibri","sans-serif";">“We’re
excited to leverage the collective action model of Groupon Grassroots to raise
support for the<b> </b>HOPE Totebag project,”
said Neil Rubenstein, Illinois Rep for CHERUBS. “We look forward to creating
new awareness for CHERUBS as one of the local organizations in Chicago to be
featured on Groupon Grassroots.”<b><o:p></o:p></b></span></div>
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<span style="font-family: "Calibri","sans-serif";">One hundred
percent of the Groupon Grassroots campaign proceeds will be used to provide much
needed funding to keep this project going.
It costs CHERUBS approximately $50 in product and postage to mail each
totebag. Typically, CHERUBS mails about
30 totebags per month. The totebags
contains items such as blankets, disposable camera, gas cards, and other welcome
items that parents often don’t think about before a lengthy NICU stay. CDH babies can be hospitalized in the NICU
for 6 months or longer. <o:p></o:p></span></div>
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<span style="font-family: "Calibri","sans-serif";">CHERUBS currently
has over 4,200 members in all 50 states and in over 60 countries. 1 in every 2500 pregnancies results in a CDH
diagnosis. Unfortunately, there are over
52,000 children diagnosed with CDH every year around the world. There is only a 50% survival rate for children
born with this birth defect. </span><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"> <o:p></o:p></span></div>
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<b><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">About CHERUBS<o:p></o:p></span></b></div>
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<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">CHERUBS
is the world's first, oldest, and largest CDH non-profit organization. CHERUBS is truly a grassroots organization -
CDH families creating something out of nothing when there was no other CDH group,
information and services in 1995.
CHERUBS was created to make sure that no family endures Congenital
Diaphragmatic Hernia without support or accurate information. For more information on CHERUBS, visit <a href="http://www.cherubs-cdh.org/">http://www.cherubs-cdh.org</a>. <o:p></o:p></span></div>
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<a href="http://www.blogger.com/blogger.g?blogID=2795642000206442034" name="OLE_LINK13"></a><b><span style="font-family: "Calibri","sans-serif";">About Groupon Grassroots<o:p></o:p></span></b></div>
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<a href="http://www.blogger.com/blogger.g?blogID=2795642000206442034" name="OLE_LINK8"></a><span style="font-family: "Calibri","sans-serif";">Groupon
Grassroots, launched in July 2010 in Chicago as G-Team, features local campaigns
nationwide, enabling Groupon followers to do good, have fun, and make a real
impact in their communities. </span><span style="font-family: "Calibri","sans-serif";">Groupon Grassroots uses collective
action to gather support for worthwhile causes and produce tangible results for
local organizations. To learn more about Groupon Grassroots and how to become a
featured organization, visit </span><a href="http://grassroots.groupon.com/"><span style="color: windowtext; font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">http://grassroots.groupon.com</span></a><span style="font-family: "Calibri","sans-serif";">. To subscribe to Groupon, visit </span><a href="http://www.groupon.com/"><span style="color: windowtext; font-family: "Calibri","sans-serif";">http://www.groupon.com</span></a><span style="font-family: "Calibri","sans-serif";">.</span><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"><o:p></o:p></span></div>
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<b><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">Press Contacts:<o:p></o:p></span></b></div>
<table border="0" cellpadding="0" cellspacing="0" class="MsoNormalTable" style="border-collapse: collapse; mso-padding-alt: 0in 5.4pt 0in 5.4pt; mso-yfti-tbllook: 1184;">
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<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">CHERUBS<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">Neil Rubenstein<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">847.530.6070<o:p></o:p></span></div>
<div class="MsoNormal">
<a href="mailto:illinois@cherubs-cdh.org"><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">illinois@cherubs-cdh.org</span></a><b><u><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"><o:p></o:p></span></u></b></div>
</td>
<td style="padding: 0in 5.4pt 0in 5.4pt; width: 221.4pt;" valign="top" width="295"><div class="MsoNormal">
<b><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">Groupon<o:p></o:p></span></b></div>
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<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">Erin Yeager<o:p></o:p></span></div>
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<span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">312.999.3434<o:p></o:p></span></div>
<div class="MsoNormal">
<a href="mailto:eyeager@groupon.com"><span style="color: windowtext; font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;">eyeager@groupon.com</span></a><span style="font-family: "Calibri","sans-serif"; mso-bidi-font-family: Arial;"><o:p></o:p></span></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-92129840997116530062013-04-12T18:38:00.001-05:002013-04-12T18:39:33.215-05:00U.S. House of Representatives Introduces Resolution for CDH Awareness Month<br />
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H. Res 144 that was introduced this week in the United States House of Representatives to make April, 2013 "National Congenital Diaphragmatic Hernia Awareness Month" by Rep. Martha Roby (R-AL) and co-sponsored by Rep. George Holding (R-NC). <o:p></o:p></div>
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A companion bill was passed unanimously in the Senate on March 20, 2013 - S. Res. 85 which was sponsored by Senator Jeff Sessions (R-AL) and co-sponsored by Senator Ben Cardin (D-MD).<o:p></o:p></div>
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Congenital Diaphragmatic Hernia (CDH) affects 1600 babies a year in the United States, taking the lives of 800 children. CDH occurs when the diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. The cause is unknown. There is no awareness and very little research funding. </div>
<br />
<br />
<a href="http://cdhsupport.blogspot.com/2013/04/us-house-of-representatives-introduces.html#links">CHERUBS - Congenital Diaphragmatic Hernia (CDH): U.S. House of Representatives Introduces Resolution for CDH Awareness Month</a><br />
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<a href="http://www.cdhawarenessday.org/" target="_blank"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBzuvQnJu7lhnv96VtolUDZAumUgtUrQuZKZ4TO727nJG5iUYpESi_HBhVzvKKves4Kfs6xa3tZBfx9lUInWAQphn9ZM9v_3sF6aMr1Oa0nujZ47hL8VcMGU8IXU0003yvr7_6vkUlme4/s640/HouseSenate.jpg" width="425" /></a></div>
<br />Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-71622788961965598672013-04-09T01:43:00.001-05:002013-04-09T09:41:59.752-05:00April 19th 2013 Chicago Parade of Cherubs Press Release<br />
SUMMARY:<br />
Chicago, IL - <a href="http://www.cherubs-cdh.org/" target="_blank">CHERUBS</a>, a non-profit organization, worked with Senators Jefferson Sessions (R-AL) and Benjamin Cardin (D-MD) to gain national awareness for the birth defect, Congenital Diaphragmatic Hernia, through Senate Resolution 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.<br />
<br />
A local “Parade of Cherubs” awareness event will be held on April 19th to benefit national charity CHERUBS and research at Lurie Children's Hospital of Chicago.<br />
<br />
Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity, and preventing lung growth. It affects 1 in every 2,500 babies, representing approximately 1,600 babies in the United States each year, half of which do not survive.<br />
<br />
PRESS RELEASE: <b>Grassroots Parent Group Works With Senator Sessions to Raise Awareness with Unanimous Senate Passing of April, 2013 “Congenital Diaphragmatic Hernia Month” Resolution</b><br />
<br />
FOR IMMEDIATE RELEASE<br />
Media Contact:<br />
Neil Rubenstein<br />
847.530.6070<br />
<a href="mailto:illinois@cherubs-cdh.org">illinois@cherubs-cdh.org</a><br />
<br />
Chicago, IL (April 8, 2013) – On March 26, 2013, U.S. Senators Jeff Sessions (R-AL) and Ben Cardin (D-MD) introduced Senate Resolution 85. <br />
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U.S. Sen. Jeff Sessions (R-AL), along with his colleague Sen. Ben Cardin (D-MD), issued the following statement on March 22nd after the unanimous approval of Senate Resolution 85, designating April 2013 as Congenital Diaphragmatic Hernia (CDH) Month:<br />
<br />
“I am pleased that the Senate has unanimously declared April 2013 as National Congenital Diaphragmatic Hernia Awareness month. By joining together, we can help raise awareness of this serious birth defect. Early detection, good prenatal care, and awareness are vital for the survival, and healthy future, of the children born with this defect.”<br />
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On Friday, April 19th, U.S. Senator Jeff Sessions (R-AL) will meet with families affected by Congenital Diaphragmatic Hernia who are participating in a “Parade of Cherubs” in Washington, DC, to raise awareness of the deadly birth defect. Sen. Sessions’ three-year old grandson, Jim Beau, is a CDH survivor. In Jim Beau’s honor, the Senator’s family will take part in the event, and Sen. Sessions is requesting a Congressional Bill for the benefit of Congenital Diaphragmatic Hernia Research.<br />
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Families will also meet with members of the House of Representatives on April 18th, which will be followed by a reception that evening on Capitol Hill to celebrate the passing of the Resolution in the Senate.<br />
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“CDH awareness and research is very important and especially to me because my grandson, Jim Beau, was born with CDH in 2009,” said Senator Sessions. “This is a life threatening birth defect that not many people have heard about. Only 50 percent of the babies survive and that number could and should be higher. Research and awareness are key and we are excited that CHERUBS chose to parade in DC this year.” said Senator Sessions at last year’s event in Washington, DC.<br />
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CDH occurs when the diaphragm fails to form or to close totally and the opening allows abdominal organs into the chest cavity, inhibiting lung growth. CDH affects approximately one in every 2,500 babies, or about 1,600 babies in the United States each year. It is as common as cystic fibrosis and spina bifida. Roughly 50 percent of babies born with CDH do not survive. The cause is still unknown.<br />
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The parade has been organized through CHERUBS, a North-Carolina based grassroots nonprofit organization started by Dawn Williamson whose son, Shane, died in 1999 at the age of six from CDH complications. Children donned in wings will begin the three-mile walk at 11:00 a.m. at the Lincoln Memorial; they will travel past the Washington Monument and the White House, and conclude at the U.S. Capitol Building.<br />
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“We are thrilled to have so many survivors and families affected by CDH as well as the medical community come out to support the cause,” said Dawn Williamson, president and founder of CHERUBS. “Not only are we celebrating the passing of this very important Senate Resolution for CDH awareness but our members have been gathering Proclamations from Governors and Mayors around the country as well to help raise awareness on a local level.”<br />
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CHERUBS is working with <a href="https://www.facebook.com/luriechildrens" target="_blank">Ann & Robert H. Lurie Children's Hospital of Chicago</a> to put on the <a href="https://www.facebook.com/events/530087357016093" target="_blank">Chicago Parade of Cherubs</a> on April 19th. The Illinois Representative for CHERUBS, Neil Rubenstein, is organizing the <a href="http://dl.dropbox.com/u/47697424/April%2019%20Chicago%20Parade%20flyer%202013.pdf" target="_blank">Chicago Parade</a>. Starting at 11:00 a.m., participants will take part in a balloon launch at Childerley Park in Wheeling to pay respect to all those CHERUBS lost. Then they will walk 2.5 miles through Wheeling and Buffalo Grove to help raise awareness of CDH. Close to 70 people (from four states) are expected to participate in this awareness & fundraising event.<br />
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“Join us after the parade at Lou Malnati's in Buffalo Grove for lunch and help us <a href="https://www.facebook.com/events/161028807384812" target="_blank">Pack Potbelly's</a> in Wheeling to raise additional money towards CDH research (from 3pm - 6 pm on April 19th as well)” invites Rubenstein.<br />
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50% of the money raised will stay local and be donated to Lurie Children's Hospital of Chicago.<br />
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Several cities across the U.S. are also hosting “Parades of CHERUBS” on the same weekend including, Washington DC, New York, Chicago, Denver, Seattle, Dallas, Peoria, Portland, Salt Lake City, Phoenix, St. Louis and Philadelphia. In addition to the parades, there will be a CDH Baseball Night with the Las Vegas 51’s, a Sky Dive Fundraiser in Shropshire, UK, and both the CN Tower in Toronto, Ontario, Canada and City Hall in Dublin, Ireland, will be lighting up for CDH Awareness. Many families will also be holding fundraisers and awareness events in honor or in memory of their children born with CDH. A virtual Parade of Cherubs has been set up on Facebook and Twitter so people can show their support by uploading photos and videos.<br />
<br />
April 19th is recognized as the International Day of Congenital Diaphragmatic Hernia Awareness by families in 60 countries.<br />
<br />
Shands for Children at the University of Florida in Gainesville, DHREAMS CDH Genetic Lab at Columbia Presbyterian Hospital, the Congenital Diaphragmatic Hernia (CDH) Genetic Research Study at Massachusetts General, the St. Louis Fetal Care Institute, and The Center for Fetal Diagnosis and Treatment at CHOP have all been integral in raising CDH Awareness this year by sponsoring or assisting with Parades of CHERUBS at their respective hospitals.<br />
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A Virtual Parade of Cherubs will include 100's of CDH families submitting stories, photos and video over social media. More information can be found at <a href="https://www.facebook.com/cdhsupport">https://www.facebook.com/cdhsupport</a>.<br />
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If you would like to help spread the word, or to learn more about CHERUBS and the upcoming parades, please visit<br />
<a href="http://www.cdhawarenessday.org/">www.cdhawarenessday.org</a><br />
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###<br />
Additional Information:<br />
Senate Resolution - <a href="http://www.govtrack.us/congress/bills/113/sres85">http://www.govtrack.us/congress/bills/113/sres85</a><br />
CHERUBS – <a href="http://www.cdhawarenessday.org/">http://www.cdhawarenessday.org</a>/Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-70848760711168829112013-03-25T00:47:00.000-05:002013-03-25T00:47:21.028-05:00Everything you need to know......About the <a href="https://www.facebook.com/events/530087357016093" target="_blank">Chicago Parade of Cherubs</a> on April 19th:<br />
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<ol>
<li>Deadline for purchasing your shirts is March 31st if you want to receive it at the parade.</li>
<ul>
<li>You can purchase shirts via <a href="http://cdhawarenessday-2013chicago.eventbrite.com/" target="_blank">Eventbrite</a> or <a href="https://www.firstgiving.com/10125/cdhawarenessday2013" target="_blank">FirstGiving</a> </li>
</ul>
<li>You can register using the same links above up until the day of the event. If you use FirstGiving to register, please join the Chicago team (after you register).</li>
<li>If you are planning to attend the Lou Malnatis (all you eat pizza/soda) lunch after the parade, I need to know ASAP. <b>Adults are $12 and children are $7.50.</b> If we don't have enough people signed up, I have to cancel the reserved room. We can still do lunch, but it won't be all you can eat. I need to need by<b> March 31st</b> if you are planning to come to the lunch.</li>
</ol>
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<b><a href="http://dl.dropbox.com/u/47697424/April%2019%20Chicago%20Parade%20flyer%202013.pdf" target="_blank">Day of Schedule</a> <== click link to download schedule</b></div>
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<span style="line-height: 115%;">11:00 a.m. –
Arrive at Childerley Park – 506 McHenry
Rd , Wheeling, IL<o:p></o:p></span></div>
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<span style="line-height: 115%;">11:15 a.m. –
Moment of silence to remember those CHERUBS lost<o:p></o:p></span></div>
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<span style="line-height: 115%;">11:20 a.m. –
Balloon launch<o:p></o:p></span></div>
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<span style="line-height: 115%;">11:30 a.m. –
Wrap up pictures and begin march/parade (2.5 miles)<o:p></o:p></span></div>
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<span style="line-height: 115%;">12:30 p.m. –
Finish march back at Childerley Park<o:p></o:p></span></div>
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<span style="line-height: 115%;">1:00 p.m. – Drive
to Lou Malnati’s (about ½ mile from park) for Lunch <o:p></o:p></span></div>
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<a href="http://www.loumalnatis.com/"><span style="line-height: 115%;">85 South Buffalo Grove Road</span></a><span style="line-height: 115%;"> ($12 per adult, $7.50 per child)<o:p></o:p></span></div>
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<span style="line-height: 115%;">2:00 p.m. –
Good-byes?? <o:p></o:p></span></div>
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<span style="line-height: 115%;">3:00 p.m. –
6:00p.m. – <b><a href="https://www.facebook.com/events/161028807384812/" target="_blank">Pack Potbelly’s Fundraiser</a></b> - 1520 E Lake Cook Rd, Wheeling (no flyer
needed) – 25% of sales donated to CHERUBS<span style="font-size: 16pt;"><o:p></o:p></span></span></div>
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<a href="http://dl.dropbox.com/u/47697424/April%2019%20Chicago%20Parade%20flyer%202013.pdf" target="_blank"><img border="0" height="250" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaQiltSL5FxkYb1wdNgcsZMIl-jny4f8DqQGQ2FPlD10qdoKka0EMxmwMacCWHDyKXSDGU67oSGr_9mmCfvHzNmB4nHs4VsWT2q_exiuUiw4R5Lohh6M6vyvgINenvzGSaKUPByAfMRsA/s400/2013+Parade+Route.jpg" width="400" /></a></div>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-86208355459527198162013-03-24T07:51:00.001-05:002013-03-24T07:55:13.463-05:00S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.<br />
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On March 20, 2013 Senator Jeff Sessions (R-AL), along with Co-Sponsor Senator Ben Cardin (D-MD) introduced S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.<o:p></o:p></div>
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On March 20, 2013 it was passed.<o:p></o:p></div>
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The United States Senate has officially designated April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.<o:p></o:p></div>
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<a href="http://www.govtrack.us/congress/bills/113/sres85">http://www.govtrack.us/congress/bills/113/sres85 </a><o:p></o:p></div>
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This is an incredible victory for our cause in the battle against CDH and today, we celebrate! <o:p></o:p></div>
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This resolution not only asks for awareness for an entire month but for research as well. A press release and full text will be posted soon.<o:p></o:p></div>
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Even as we celebrate, the war is not yet over. We are now rallying the troops to introduce and pass a resolution in the United States House of Representatives as well for CDH Awareness and also for Research. <o:p></o:p></div>
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We also continue to gather proclamations from cities and states for more local awareness. <o:p></o:p></div>
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The Parades of Cherubs across the country will now turn into celebrations also.<o:p></o:p></div>
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The Washington DC Parade of Cherubs has now changed focus from the Senate to the House as we march on Capitol Hill.<o:p></o:p></div>
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We ask our members and supporters to continue to push to raise more CDH Awareness, to join in and celebrate with us on April 19th by marching in a Parade of Cherubs, joining an event or participating in the Virtual Parade of Cherubs on-line. <o:p></o:p></div>
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<a href="http://www.cdhawarenessday.org/">http://www.cdhawarenessday.org </a><o:p></o:p></div>
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This achievement has been many, many years in the making but it could not have been done without the support of our members, other CDH charities, all those who signed the petitions and all those who never gave up. Our deepest, sincerest gratitude goes out Senator Sessions and his family for without their cherub, Jim Beau, and their amazing support none of this would be possible.</div>
<br />
<br />
<br />
<a href="http://cdhsupport.blogspot.com/2013/03/sres-85-resolution-designating-april.html#links">CHERUBS - Congenital Diaphragmatic Hernia (CDH): S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-53473335828566631042013-03-11T00:45:00.001-05:002013-03-11T00:46:42.516-05:00CHERUBS - Chicago Parade of Cherubs on April 19th!<br />
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Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!! <o:p></o:p></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvkTaNppOe1N8Z-tQ07MpQBWyT6S-aWUJcFi2I3A-GYDpe4XA9AOXTM9o_VyB4bV8UWI7zcitSW7ihH9K2MAbx6hpenNYU6D6GjYN90egdBB2tuDpAT9y1ejWPHHMLqK_7HFpuElbbkJw/s1600/eventbanner-chicago.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="146" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvkTaNppOe1N8Z-tQ07MpQBWyT6S-aWUJcFi2I3A-GYDpe4XA9AOXTM9o_VyB4bV8UWI7zcitSW7ihH9K2MAbx6hpenNYU6D6GjYN90egdBB2tuDpAT9y1ejWPHHMLqK_7HFpuElbbkJw/s400/eventbanner-chicago.png" width="400" /></a></div>
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Chicago, IL Parade<o:p></o:p></div>
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On Facebook - <a href="https://www.facebook.com/events/530087357016093/">https://www.facebook.com/events/530087357016093/</a><o:p></o:p></div>
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Register on Eventbrite - <a href="http://cdhawarenessday-2013chicago.eventbrite.com/">http://cdhawarenessday-2013chicago.eventbrite.com/</a><o:p></o:p></div>
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Set up your own Team Member page on Firstgiving - <a href="https://www.firstgiving.com/10125/cdhawarenessday2013">https://www.firstgiving.com/10125/cdhawarenessday2013</a><o:p></o:p></div>
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50% of money raised will be donated to Lurie Children's Hospital of Chicago (formerly Children's Memorial) for CDH Research<o:p></o:p></div>
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Contact Neil Rubenstein with any questions about this event at i<a href="mailto:llinois@cherubs-cdh.org">llinois@cherubs-cdh.org</a></div>
<br />
<br />
<a href="http://cdhsupport.blogspot.com/2013/03/chicago-parade-of-cherubs-on-april-19th.html#links">CHERUBS - Congenital Diaphragmatic Hernia (CDH): Chicago Parade of Cherubs on April 19th!</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-62034476710256411502013-02-11T09:00:00.000-06:002013-02-11T09:00:01.308-06:00So much CDH Awareness Going On!There so much going on in Illinois with respect to CDH awareness and around the world, I almost don't know where to start. <br />
<br />
But first and foremost is our petition to get the <a class="g-profile" href="http://plus.google.com/105479712798762608629" target="_blank">+The White House</a> (<a href="http://twitter.com/whitehouse" target="_blank">@WhiteHouse</a> on twitter) to light up in the colors of <a href="http://www.cherubs-cdh.org/" target="_blank">CHERUBS</a> on April 19th...the International Day of Congenital Diaphragmatic Hernia Awareness. We need to get 100,000 signatures in just 30 days to even be considered by the administration...so we have our work cut out for us. Just go to <a href="http://www.cdhawarenessday.com/">www.cdhawarenessday.com</a> to sign the petition. <br />
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<a href="http://www.cdhawarenessday.com/" target="_blank"><img border="0" height="170" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBit-qW7y-n0Wx1b54aJtka5tFTarYa0P8S0TvYGcDLLYy08CKo3wliXrR1um-Geu1GmfRWzA0XtzKO3Vl2_W6gZZreOocEFL2McJriwuu2QcJYR7tjn7BqNrPNp-0JyKcDMkihyHezes/s400/Aidan+petition.jpg" width="400" /></a></div>
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We have a lot of fundraisers in the Chicago area leading up to the Chicago and Peoria parades on April 19th. This year any money raised (individual donations and corporate sponsors) before April 19th will be split between <a href="https://www.facebook.com/luriechildrens" target="_blank">Ann & Robert H. Lurie Children's Hospital of Chicago</a> and <a class="g-profile" href="http://plus.google.com/108015306961163948330" target="_blank">+CHERUBS</a> in the Chicago area. In the Peoria area, the funds raised will be split with <a href="https://www.facebook.com/osfsaintfrancis" target="_blank">OSF Saint Francis Medical Center</a>.</div>
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To sign up for either the Chicago or Peoria parades, please register via <a href="https://www.firstgiving.com/10125/cdhawarenessday2013" target="_blank">FirstGiving</a>. Once you sign-up, join either the Chicago or Peoria team. You can also set up your own FirstGiving page to fundraise in your child's honor or memory. We will be using the same shirt this year for all the parades around the country with 50% of the t-shirt proceeds being donated back to the respective local hospital. You can purchase your t-shirt when you register via FirstGiving. For more up to date information, see the <a href="https://www.facebook.com/events/562260840470364" target="_blank">Peoria Facebook event</a> or <a href="https://www.facebook.com/events/530087357016093/" target="_blank">Chicago Facebook event</a>. </div>
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Donations will also be accepted on April 19th at either parade. If you are interested in making a corporate donation, sponsorship levels are listed on the <a href="https://www.firstgiving.com/10125/cdhawarenessday2013" target="_blank">FirstGiving page</a> or you can email me at <a href="mailto:nrubenstein@cherubs-cdh.org">nrubenstein@cherubs-cdh.org</a>. You can get your company name on the back of the shirt that will be used for all US and Canadian events for as little as a $100 donation. And for $200, you can include you literature in the Chicago Parade participant bag. </div>
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I am also looking for a corporate sponsor for a fundraising program for as little as $500. This program will be launched in Chicago but will have international exposure. Email me for details: <a href="mailto:nrubenstein@cherubs-cdh.org">nrubenstein@cherubs-cdh.org</a></div>
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Other Chicago area fundraisers:</div>
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<ul>
<li><a class="g-profile" href="http://plus.google.com/101439950290883489939" target="_blank">+Smashburger</a> Gives Back to CHERUBS on February 19 ==> <a href="https://www.facebook.com/events/258356930961574" target="_blank">Facebook event for more information</a></li>
<li>Lou Malnati's Gives Back to CHERUBS on March 6 ==> <a href="https://www.facebook.com/events/337788786327482" target="_blank">Facebook event for more information</a></li>
<li>Superdawg Drive-in Gives Back to CHERUBS from March 18-24 ==> <a href="https://www.facebook.com/events/331236196993148" target="_blank">Facebook event for more information</a></li>
<li><a class="g-profile" href="http://plus.google.com/106895646590969686799" target="_blank">+Chick-fil-A</a> CDH Fundraiser in honor of Cherub Liam on April 19 ==> <a href="https://www.facebook.com/events/609039349111396" target="_blank">Facebook event for more information</a></li>
</ul>
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Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-17744204905582743442013-01-02T14:33:00.000-06:002013-01-02T14:33:33.305-06:00CHERUBS 2012 Milestones and Accomplishments for Congenital Diaphragmatic Hernia<div class="separator" style="clear: both; text-align: center;">
<a href="http://cdhsupport.blogspot.com/" target="_blank"><img border="0" eea="true" height="155" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTy80w1_kOxuZPL0igPCuPkS-cSlvMNfYcPdQl_7jMyUuWQ47bsUrXYawnJpsc-8pObMaKbxQJXhNuikxjbzLbVcN9PKtAQ0AAzRnUYeuwT3LhUpXAFX4Sv9WmRkTOwnxEVGjP7RQVUUU/s400/CHERUBS.png" width="400" /></a></div>
<br />
As we wrap up 2012 and welcome 2013, our charity would like to thank all of the members, donors and friends who make it possible for us to help families affected by Congenital Diaphragmatic Hernia.<br /><br />We are very proud of our accomplishments this year and look forward to many more in the upcoming year!<br /><br /><b>CHERUBS 2012 Milestones and Accomplishments (so far): </b><br /><br /> * New Executive Board of Directors<br /> * New Parent Advisory Board<br /> * New Medical Advisory Board<br /> * New Vice-President, Ashley Barry<br /> * New Secretary, Lauren Campbell<br /> * New Treasurer, Kelly Green-Krist<br /> * Senate Bill S.3396 Introduced<br /> * Parade of Cherubs on April 19th in Washington DC to Capitol Hill<br /> * Members met with the offices of over 25 Senators<br /> * April 19th CDH<br /> * Parades of Cherubs on April 19th in <strong>Chicago</strong>, Seattle, Portland, Denver, St. Louis, Peoria<br /> * UK Light up The Night on April 19th<br /> * <strong>First ever Virtual CDH Awareness Parade on April 19th</strong> * 2012 CDH Conference in San Francisco<br /> * New CHERUBS Web Site<br /> * New Logo<br /> * New Facebook Forums Application created<br /> * $10,000 CDH Research Grant contest started (ends December 30th)<br /> * $10,000 CDH Research Grant awarded to ______________ on December 30th (by votes)<br /> * Another $10,000 CDH Research Grant awarded to ______________ on December 30th (already chosen)<br /> * First ever Facebook Grant Contest held by a CDH charity<br /> * Over 300 care packages sent to families through our CDH HOPE Totebag project<br /> * CDH families represented at the American Pediatric Surgical Association conference<br /> * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs<br /> * Texas Get-Together<br /> * Ohio Picnic<br /> * UK Get-Together in Scotland<br /> * <strong>Chicago CDH Carnival</strong> * Pennsylvania / NJ / Delaware Picnic<br /> * Denver Picnic<br /> * Indiana Get-Together<br /> * Washington Zoo Trip<br /> * Oregon members met with Senators<br /> * Oregon members represent CDH families at the opening of Randall Children's Hospital<br /> * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research<br /> * Over 10,000 Facebook Fans reached<br /> * Over 10,000 signatures reached on CDH Research Bill petition<br /> * Over 18,000 people reached in one post on Facebook<br /> * 2012 Silver Lining Newsletter Published<br /> * 2012 CDH Awareness Video<br /> * Day of 2012 CDH Awareness Video<br /> * Participated in televised Raleigh Christmas Parade<br /> * CHERUBS members in Claremont, NC Christmas Parade<br /> * CHERUBS members in Snoqualmie Days Parade<br /> * It's a Knock-Out UK Fundraiser<br /> * Masquerading Angels Ball<br /> * UK Formal Ball<br /> * CDH Awareness Calendar featuring over 1300 CDH patients<br /> * Save the Cherubs CDH Awareness Calendar<br /> * First CDH Awareness Calendar in the United Kingdom<br /> * Won Shane Co. charity contest<br /> * Won the JuJuBelle Facebook contest<br /> * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital<br /> * Washington Mud Run Fundraiser<br /> * <strong>Enter Stage Left Fundraiser</strong> * UK Fishing Competition Fundraiser<br /> * Rockin' for Aidan Fundraiser<br /> * <strong>CHERUBS joins Google+<br /> * CHERUBS joins Chirpify<br /> * CHERUBS joins Pinterest<br /> * CHERUBS joins Instagram</strong> * CDH Fundraising Kits created<br /> * Cooking With Cherubs cookbook project begun<br /> * Participated in the San Francisco Marathon<br /> * Participated in the Boston Marathon<br /> * Participated in the Baltimore Marathon<br /> * Participated in the Great Human Race in Durham, NC<br /> * Participated in the Iron Girl all women's half Marathon in the Mid-Atlantic<br /> * Participated in the Baltimore, MD Metric Marathon<br /> * Participated in the High Cloud Snapple Half Marathon in Washington, DC<br /> * Save The Cherubs in the Silicon Valley<br /> * New Holiday Facebook Covers project started<br /> * Dozens of free CDH Awareness graphics made<br /> * New yellow CDH Awareness Bracelets created<br /> * 47 members of the Angel Club<br /> * Over 100 new Save the Cherubs posters created<br /> * Membership reaches over 4200 families in 54 states<br /> * CHERUBS moves to new office<br /> * 5 television interviews<br /> * Over 2 dozen newspaper articles<br /> * 1 magazine article<br /> * Moved to new office<br /><br />Be sure to check out the main <a href="http://cdhsupport.blogspot.com/" target="_blank">CHERUBS blog</a> for more great pictures of our 2012 accomplishments.<br />
Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-2795642000206442034.post-62555848883649863592012-12-29T01:14:00.001-06:002012-12-29T01:20:20.646-06:00There's still time to vote: CHERUBS sponsors $10,000 Facebook Contest to Benefit CDH Research<br />
<span style="background-color: white;">Something very exciting is going on at <a class="g-profile" href="http://plus.google.com/108015306961163948330" target="_blank">+CHERUBS</a> and we want YOU to be a part of it! Thanks to all of you wonderful members and fans for buying and selling raffle tickets we are ready to award a $10,000 CONGENITAL DIAPHRAGMATIC HERNIA RESEARCH GRANT!!!! </span><span style="background-color: white;">We could choose a hospital ourselves but we thought it would be more fun, and raise more awareness, to get your help! So the hospital with the most votes by December 30th will win $10,000 for CDH Research!!!!!!!!!!!!</span><br />
<span style="background-color: white;"><span style="color: red; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"><b><span style="font-size: x-small;"><br /></span></b></span></span>
<span style="background-color: white;"><span style="color: red; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"><b><span style="font-size: x-small;">Vote at </span><a href="https://www.facebook.com/questions/10151158907097006" style="color: #993322; text-decoration: initial;"><span style="font-size: x-small;">https://www.facebook.com/questions/10151158907097006</span></a></b></span><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;"> </span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; font-size: 14px; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif;">In the running are the following CDH labs and clinics: </span><br style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; line-height: 21px;" /><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif;"><br />
</span><span style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; line-height: 21px;"></span></span><br />
<ul style="color: #333333; font-family: Georgia, Utopia, 'Palatino Linotype', Palatino, serif; line-height: 1.4; list-style-image: initial; list-style-position: initial; margin: 0.5em 0px; padding: 0px 2.5em;">
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">Congenital Diaphragmatic Hernia (CDH) Genetic Research Study</span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">DHREAMS Research Study (Congenital Diaphragmatic Hernia) Lab </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">St. Louis Fetal Care Institute </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">Baylor College of Medicine CDH Genetic Lab </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">The Center for Fetal Diagnosis and Treatment at CHOP </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">UCSF Fetal Treatment Center </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">Shands at the University of Florida CDH Clinic </span></li>
<li style="border: none; margin: 0px 0px 0.25em; padding: 0px;"><span style="background-color: white;">Boston Children's Hospital CDH Clinic </span></li>
</ul>
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<span style="color: #333333; font-family: Georgia, Utopia, Palatino Linotype, Palatino, serif;">For more information:</span><br />
<br />
<a href="http://cdhsupport.blogspot.com/2012/12/cherubs-sponsors-10000-facebook-contest.html#links">CHERUBS - Congenital Diaphragmatic Hernia (CDH): CHERUBS sponsors $10,000 Facebook Contest to Benefit CDH Research</a>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-2795642000206442034.post-78250632104812024792012-12-04T01:27:00.000-06:002012-12-04T01:27:48.443-06:00Thank you, Thank you, Thank you!!Well we did it! What? We got 10,000 signatures/supporters (our goal) on the <a href="http://www.change.org/petitions/in-support-of-congressional-bill-s-3396-for-congenital-diaphragmatic-hernia-research" target="_blank">CDH Research Bill petition</a>. Now what? The petition is still open, so if you have not signed it yet---please do so. More is always better. We need to convince the Review Committee that Bill S.3396 is worth passing on to the entire Senate for a vote. All 10,100 (as of this post) will be printed out and hand delivered to the the Senators on the Committee in Washington D.C. <div>
<br /></div>
<div>
If you have not done so, please write your Senators telling them how important this Bill is to you. You can find letter templates and additional information at <a href="http://www.cdhbills.org/">www.cdhbills.org</a>. We are on our way and 10,000 supporters is amazing, but we still have more work to do. </div>
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<br /></div>
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<b>In other news</b>, the 1st ever Chicago Kids Carnival was a huge success. We had at least 150 guests brave the torrential rain and tornadoes to help raise money for CHERUBS. I am already looking forward to next year. If you have not seen the pictures already...they can be found on the <a href="https://www.facebook.com/media/set/?set=a.10151122209297006.427285.37214172005&type=3" target="_blank">CHERUBS Facebook page</a>.</div>
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<br /></div>
<div>
<b>So what's next?</b> There are so many events and fundraisers going on, it's hard to keep track....but here goes:</div>
<div>
<br /></div>
<div>
<b>Petitions:</b></div>
<div>
<ol>
<li> You can still sign the <a href="http://www.change.org/petitions/in-support-of-congressional-bill-s-3396-for-congenital-diaphragmatic-hernia-research" target="_blank">CDH Research Bill</a> - the more signatures the better</li>
<li> You can sign the <a href="https://petitions.whitehouse.gov/petition/light-white-house-clouds-international-day-congenital-diaphragmatic-hernia-awareness-april-19/xdZS0vsZ" target="_blank">Light the White House up with Clouds on April 19 petition</a></li>
</ol>
<div>
<b>Fundraisers/Events:</b></div>
</div>
<div>
<ol>
<li>Toy Drive to benefit <a href="https://www.facebook.com/events/443257222405923/" target="_blank">Hope Children's Hospital</a>. I am happy to bring donations down to the drop-off spot as long as I have the toys by 12/10. </li>
<li><a href="https://www.facebook.com/events/172375582908955/" target="_blank">Enter Stage Left CHERUBS</a> Fundraiser in Woodstock, IL</li>
<li><a href="https://www.facebook.com/events/474536069265521/" target="_blank">CDH Ornament sale</a> - 25% of every sale goes to CHERUBS</li>
<li>Buy a <a href="http://www.ebay.com/itm/170849619049?ssPageName=STRK%3AMESELX%3AIT&_trksid=p3984.m1555.l2649" target="_blank">CHERUBS charm on eBay</a> - 100% of the purchase price is being donated to CHERUBS and get FREE shipping</li>
<li>Participate in the <a href="https://www.facebook.com/events/256599577784396/" target="_blank">Give a $1 CHERUBS Fundraiser</a></li>
<li>Be on the lookout for more information about the <b>2nd Annual April 19th Chicago Parade of CHERUBS</b>!</li>
</ol>
<div>
<b>Other ways to participate:</b></div>
</div>
<div>
<ol>
<li>Submit you story to be included in the "<a href="https://www.facebook.com/events/424336637629856/" target="_blank">Stories of CHERUBS</a>" book to be published in February 2012</li>
<li>Submit your favorite recipes to be included in the <a href="mailto:cherubscookbook@yahoo.com" target="_blank">CHERUBS Cookbook</a>. Just send your recipe to <span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">cherubscookbook@yahoo.com. </span>Be sure to include you name and the name of the cherub you are honoring/supporting.</li>
</ol>
</div>
Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-2795642000206442034.post-90391521636776799562012-11-13T09:42:00.001-06:002012-11-13T09:45:54.929-06:00CALL TO ACTION: Ask Your Senators to Support Senate Bill S.3396 for CDH Research<div class="text_exposed_root text_exposed">
Sen. Sessions joined with Sen. Ben Cardin (D-MD) to introduce legislation this summer to raise public awareness of Congenital Diaphragmatic Hernia (CDH) and place a greater emphasis on medical research to diagnose and treat the disease. Sessions’<span class="text_exposed_hide">...</span><span class="text_exposed_show"> grandson, Jim Beau, is a CDH survivor:<br /><br />"I am honored to introduce this bill today, and am grateful for Senator Cardin’s support. This is a critical issue and early detection and awareness make a dramatic impact in the survival rate. However, more research is needed and this legislation asks the National Institutes of Health to determine whether a greater emphasis can be placed on CDH research within its existing budget."</span></div>
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<div class="text_exposed_root text_exposed">
<span class="text_exposed_show">CHERUBS is so proud to be a part of this historic event, the first step to real help to save the lives of babies born with CDH. </span></div>
<br />
<a href="http://cdhsupport.blogspot.com/2012/11/call-to-action-ask-your-senators-to_11.html" target="_blank">CHERUBS - Congenital Diaphragmatic Hernia (CDH): CALL TO ACTION: Ask Your Senators to Support Senate Bill S.3396 for CDH Research</a>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-2795642000206442034.post-73563140604300385802012-10-09T01:27:00.000-05:002012-10-09T01:27:47.885-05:00Just the facts....about the CHERUBS Kids CarnivalHopefully this will answer any and all questions you may have regarding the <a href="https://www.facebook.com/events/210928112368636" target="_blank">CHERUBS Kids Carnival</a> this Sunday.<br />
<br />
<b>Date: </b>October 14<br />
<b>Time: </b>11 am - 2 pm<br />
<b>Location: </b>Recreation Center of Highland Park located at <a href="http://mapq.st/QOJ0ro" target="_blank">1207 Park Ave. W, Highland Park, Illinois</a><br />
<b>Admission: </b>FREE - there is no entrance fee but tickets will be sold to play the games, etc.<br />
<b>Additional Venue information: </b> Plenty of parking is available onsite. This is an indoor event that will take place in one of the basketball courts with food and redemption in a separate room.<br />
<br />
<b>What kinds of activities will you have at the carnival? </b>We will have 20+ carnival games, balloon twisting by <a href="https://www.facebook.com/AuntNoratheClown" target="_blank">Aunt Nora</a>, face painting, <a href="https://www.facebook.com/KidSnips" target="_blank">KidSnips</a> will be doing hair, <a href="http://tat4u.com/tattooyou2.com/Home.html" target="_blank">TAT4u</a> will be offering airbrush tattoos, a bounce house, trivia games by Loren of <a href="http://www.funfunfundjs.com/" target="_blank">Fun, Fun, Fun DJ's</a>, and music & dancing games with Mindy from the <a href="http://www.rockandrollarts.com/" target="_blank">Rock & Roll Arts Academy</a>. <br />
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<b>Are discount tickets available? </b> Until <b>Friday</b>, tickets are being sold on the <a href="http://illinoischerubs.blogspot.com/" target="_blank">CHERUBS Illinois blog</a> at a discount when you use coupon code = CHERUBS. Just click the drop down menu on the right hand side of this blog to purchase your discounted tickets. For a very limited time, you can purchase 15 tickets for $10 (with coupon code). Normal price the day-of the carnival will be <b>$10 for 12 tickets</b>.<br />
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<b>Any other way to get more Free tickets?</b> Yes, check into the CHERUBS Kids Carnival on <a href="https://foursquare.com/v/cherubs-kids-carnival/5055428ff31ceeaac8ee3b42" target="_blank">foursquare</a> and get 2 more FREE tickets (when you spend at least $10 on tickets). Just show your check-in at the ticket booth to claim your 2 FREE tickets. Only 2 FREE tickets per family.<br />
<br />
<b>Is there an unlimited game pass available?</b> Absolutely. For $25, you can purchase an unlimited 2 hour game pass. The pass is valid for 2 hours from time of purchase (or until 1:30 p.m whichever is earlier). The pass is valid for all carnival games and the bounce house. Pass is not valid for face painting, tattoos, food, raffle, etc. <br />
<br />
<b>How much does everything "cost"? </b><br />
<br />
<ul>
<li>All carnival games will cost <b>1 ticket</b></li>
<li>Bounce house will cost <b>2 tickets</b></li>
<li>Small face paint (arm, cheek, etc.) will cost 1 ticket and a full face paint will cost <b>3 tickets</b></li>
<li>Airbrush tattoo will cost <b>1 ticket</b> and so will a balloon animal</li>
<li>KidSnips makeovers will cost </li>
<ul>
<li><b>1 ticket</b> for temporary hair color and/or faux mohawk</li>
<li><b>2 tickets</b> for an awesome braid</li>
<li><b>4 tickets</b> for a braided hair wrap with colored string</li>
</ul>
<li>Trivia games are <b>FREE </b>(and we have some great pizes to give away)</li>
<li><a href="https://www.facebook.com/HighlandPop" target="_blank">Highland Pop</a> popcorn will cost <b>2 tickets</b></li>
<li>Cotton candy will cost <b>2 tickets</b></li>
<li>Vienna hot dog lunch (including soda/water, chips and a pickle) will cost <b>4 tickets</b></li>
<li><a href="https://www.facebook.com/sugarbeezcookies" target="_blank">Sugar Beez</a> cookies will be <b>1 ticket </b>and <a href="https://www.facebook.com/spunkydunkers" target="_blank">Spunky Dunkers</a> donuts will cost <b>2 tickets</b></li>
<li>Carnival tickets will also be used to participate in the silent raffle for amazing prizes</li>
</ul>
<div>
<b>What kinds of prizes are available in the silent raffle?</b> Too many to list right now...but great stuff from the Chicago Sky, Bulls, Boomers, Wolves, Lynfred Winery, Wildfire, Creative Celebrations, Rock & Roll Academy, Embraced, Fab Band, Sprinkle with Love, The Hungry Monkey, Panera Bread, Noodles & Co., Sports Clips, The Best Salon, Make-a-Messterpiece, and lots more!! </div>
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<br /></div>
<div>
<b>Anything else?</b> We will also be selling 50/50 Raffle for Research tickets for $20 per ticket. 50% of the sales go towards CDH research and the other 50% of ticket sales go to the winner. The goal is to sell 1,000 tickets so $10,000 can be donated towards research and the winner will receive the remaining $10,000. </div>
<div>
<br /></div>
<div>
<b>What forms of payment will be accepted at the carnival? </b>You can pay for carnival tickets with cash, check (made out to CHERUBS), or credit card. Please note that 50/50 Raffle for Research tickets can only be purchased with cash or check. </div>
<div>
<b><br /></b></div>
<div>
<b>Will donations be accepted?</b> Of course! You can make additional donation checks out to CHERUBS or just tell us to "keep the change" to make an additional donation. You can also make a donation to CHERUBS or to the Carnival Fund right here on the CHERUBS Illinois blog using your credit card.</div>
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See you on Sunday!!</div>
Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-2795642000206442034.post-32051461762250766522012-09-11T23:53:00.002-05:002012-09-11T23:55:18.572-05:00Donate to the Carnival FundNow you can donate to the CHERUBS Illinois Carnival Fund to help defray the expenses and fees incurred to put on the event. Ultimately, the more we can defray all the costs to put on the event, the more we will be able to donate to CHERUBS in the end. To donate, just click the "Donate" button to the right of this post. <br />
<br />
As always, you can also donate directly to <a href="http://www.cherubs-cdh.org/donate/" target="_blank">CHERUBS</a> by using the "Donate" button at the top of this page. <br />
<br />
Don't forget to take advantage of the pre-carnival discount ticket prices! <br />
<br />
<span style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">Tickets at the carnival will be $10 for 12 tickets or $1 per ticket. But use coupon code = </span><b style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"><u>CHERUBS</u></b><span style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> and you will get 15 tickets for the price of 12....3 FREE tickets. Without the coupon code, the price for 15 tickets will be $12.50 pre-carnival. </span><b style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;"> Or you can purchase an unlimited 2 hour game pass (from 11-1) for just $25.00 when you use the same coupon code. Please note that the unlimited game pass cannot be shared (it is for a single person). These are <u>pre-carnival prices</u>, so buy your tickets or game pass before October 14. </b><br />
<br style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;" />
<span style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">All you have to do is click the "Buy Now" link to the right of this blog post to purchase your tickets. You will be able to collect you pre-purchased tickets at the event on October 14. </span><br />
<br style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;" />
<span style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">You must use Coupon code = </span><b style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">CHERUBS </b><span style="background-color: white; color: #222222; font-family: Arial, Tahoma, Helvetica, FreeSans, sans-serif; font-size: 13px; line-height: 18px;">to take advantage of this pre-carnival deal of 3 FREE tickets or the unlimited game pass.</span>
Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-2795642000206442034.post-76614320097911232192012-09-06T01:34:00.001-05:002012-09-07T08:41:12.680-05:00Pre-Order Carnival Tickets and Get 3 FREEThe <a href="http://cherubskidscarnival.eventbrite.com/" target="_blank">1st Annual CHERUBS Kids Carnival</a> is just over 1 month away. And now you have an opportunity to pre-order tickets and get 3 tickets FREE in the process. <br />
<br />
Tickets at the carnival will be $10 for 12 tickets or $1 per ticket. But use coupon code = <b>CHERUBS</b> and you will get 15 tickets for the price of 12....3 FREE tickets. Without the coupon code, the price for 15 tickets will be $12.50 pre-carnival. <b> Or you can purchase an unlimited 2 hour game pass for just $25.00 when you use the same coupon code. Please note that the unlimited game pass cannot be shared (it is for a single person). These are <u>pre-carnival prices</u>, so buy your tickets or game pass before October 14. </b><br />
<br />
All you have to do is click the "Buy Now" link to the right of this blog post to purchase your tickets. You will be able to collect you pre-purchased tickets at the event on October 14. <br />
<br />
You must use Coupon code = <b>CHERUBS </b>to take advantage of this pre-carnival deal of 3 FREE tickets or the unlimited game pass.<br />
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<div class="separator" style="clear: both; text-align: center;">
<a href="https://www.facebook.com/events/210928112368636/" target="_blank"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp6vztjZd0xUKFKdbZYWTBsXvQJa9Ojkbq2BTC9j_alDI9pkp0-TbD5licSczwzXLEK0GC111vmROyUMYqGitoML_wQKCvlZVAGPQb5RTVGHRm4kw7TTG_fxi1jNoss1wB-SFf3lbn8yU/s640/Kids+Carnival+flyer_sponsors+9.5.12.jpg" width="492" /></a></div>
<br />Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-2795642000206442034.post-47836602952990612912012-09-05T09:41:00.001-05:002012-09-05T12:20:45.170-05:00CHERUBS - Congenital Diaphragmatic Hernia (CDH): What does CHERUBS do for CDH Families?Here's a great list of "some" of the services that CHERUBS provides to families affected by CDH from the CHERUBS blog:<br />
<br />
<a href="http://cdhsupport.blogspot.com/2012/09/what-does-cherubs-do-for-cdh-families.html">CHERUBS - Congenital Diaphragmatic Hernia (CDH): What does CHERUBS do for CDH Families?</a>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-2795642000206442034.post-21521517611566595322012-08-30T00:13:00.000-05:002012-08-30T22:16:00.554-05:00So much to do, so little timeThere's so much going on in the CDH community both locally and across the nation that I almost don't know where to start. This post is going to be more of a list of some of the great things going on right now. I want to make it as easy as possible for you to be able to participate in as much as you feel compelled to.<br />
<br />
<b><a href="http://www.cherubs-cdh.org/bills/" target="_blank">CDH Research Bill</a>: </b>A Senate committee is currently reviewing the $50,000,000 CDH Research Bill (<b style="background-color: white;"><i>Senate Bill S.3396)</i></b>. It goes without saying that his is HUGE for the entire CDH community. Roughly $4,000,000 is allocated towards CDH research per year vs. $79,000,000 for Cystic Fibrosis. What can you do? Write your/our Senators to let them know that you support this Bill. Just for everyone's knowledge...this Bill is just asking for money that is already appropriated towards medical research to be reallocated towards CDH research. This isn't incremental dollars added to the budget....the money is already there and being spent on other birth defects and diseases. Here are some links to make it easier for you:<br />
<br />
<ul>
<li>Sign the <a href="http://www.change.org/petitions/in-support-of-congressional-bill-s-3396-for-congenital-diaphragmatic-hernia-research" target="_blank">Change.org petition</a> showing your support (we need around 3,600 signatures to reach out goal)</li>
<li>Write your senators! This is crucial and here are some templates to make it that <a href="http://www.cherubs-cdh.org/bills/letter-cdhresearch.doc" target="_blank">much easier</a>. Especially important is writing the 22 members of the committee reviewing the Bill. If the Bill doesn't get approved by the Committee...then that's it. This template also includes the addresses of all 22 senators in the reviewing committee.</li>
<li>Email your senators...email addresses are very easy to find</li>
<li>Set up a meeting with your Senators</li>
<li>Review the actual <a href="http://www.gpo.gov/fdsys/pkg/BILLS-112s3396is/pdf/BILLS-112s3396is.pdf" target="_blank">Bill</a>.</li>
<li>Track the progress of the <a href="http://www.govtrack.us/congress/bills/112/s3396" target="_blank">Bill</a>. </li>
</ul>
<div>
<br /></div>
<div>
<b><a href="http://www.cherubs-cdh.org/events/index.php#.UD7pJsFlSuw" target="_blank">CHERUBS Fundraisers & Events</a>: </b>There are so many events and fundraisers that I am having trouble keeping track right now. Here are a few of them:</div>
<div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://www.facebook.com/events/210928112368636/" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;" target="_blank"><img alt="The Chicago CHERUBS Kids Carnival" border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGwJmRTQ0BMrm6_JLrdT843OK5HvmuRySTCkchFYjkCmCJLkkYmLDKLTlZo-6gePZuimIgv_jPvTrsakQ9YR_AKyBC0wgNiyvIavpHaoJnA1MlRC0j65ec_SPKJyjCfqnu3Um4d4dY61k/s320/Kids+Carnival+flyer+8.18.jpg" title="" width="246" /></a></div>
<ul>
<li>September 15 - <a href="https://www.facebook.com/events/127038934108930/" target="_blank">CHERUBS Indiana Picnic</a></li>
<li>October 14 - Chicago CHERUBS Kids Carnival...everyone is welcome! Here are the <a href="https://www.facebook.com/events/210928112368636/" target="_blank">Facebook </a>and <a href="http://www.eventbrite.com/event/4058027670/efbnen" target="_blank">Eventbrite</a> links for additional information. This is going to be a great fundraiser and a great time!</li>
<li>October 20 - <a href="http://www.cherubs-cdh.org/angelball/" target="_blank">CHERUBS Masquerading Angels Ball</a>...this is CHERUBS largest event/fundraiser and sure to be a lot of fun!</li>
<ul>
<li>Along with the this is the 50/50 Raffle for Research going on right now. The goal is to sell 1000 tickets so the raffle winner would win $10,000 and the remaining $10,000 would go towards CDH research. I have tickets that you can buy direct or feel free to purchase them <a href="http://cdhraffle.eventbrite.com/" target="_blank">online</a>.</li>
</ul>
<li>For more events, check out the <a href="http://www.cherubs-cdh.org/events/index.php#.UEArtMFlSuw" target="_blank">CHERUBS Event Calendar</a></li>
<li><b>Online Fundraisers</b></li>
<ul>
<li><a href="http://cdhraffle.eventbrite.com/" target="_blank">50/50 Raffle for Research</a> - Tickets are $20 a piece</li>
<li><a href="http://www.gofundme.com/113of0" target="_blank">$5000 CHERUBS Challenge</a> - This is a great fundraiser from the friend of CHERUBS' own Fundraising Coordinator (Melissa). Valerie has offered to shave her head (and donate her hair to Locks of Love) if she can raise $5000 for CHERUBS. I believe someone else has also stepped up and offered to shave her head too if we can raise $10,000 for CHERUBS.</li>
<li><a href="http://www.crowdrise.com/kylees12thbirthdayba/fundraiser/freedomgreen" target="_blank">Marathon fundraiser</a> - The Green family is running a marathon to raise money for CHERUBS!</li>
<li><a href="http://www.firstgiving.com/fundraiser/cdhsupport/neilrubenstein" target="_blank">Give $1 CHERUBS Fundraiser</a> - This is a catch-all fundraiser that I created for anyone who wants to donate directly to CHERUBS.</li>
</ul>
</ul>
<div>
I probably missed something, but this is a good start...</div>
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</div>
Unknownnoreply@blogger.com3tag:blogger.com,1999:blog-2795642000206442034.post-61746343861446514222012-07-24T00:44:00.000-05:002012-07-24T00:44:21.411-05:00Huge Day for CDH Awareness!!You may or may not have heard but on July 18, Senator Jefferson Sessions (R-AL) formally introduced the Congenital Diaphragmatic Hernia Research Bill, co-sponsored by Senator Benjamin Cardin (D-MD). This is the $50,000,000 medical research bill that CHERUBS has been talking about for some time now.<br />
<br />
We have a long road to try to push this bill through, but just so everyone is aware....CHERUBS receives no money if this bill becomes law. This bill would just appropriate funds that medical institutions can petition for to help fund research. This will help the entire CDH community around the world. This is a great thing for all families currently affected and those who will be affected by CDH in the future.<br />
<br />
If you think $50,000,000 is a lot of money, let me put it into perspective with some "quick and dirty" math:<br />
<br />
1600 babies affected by CDH per year in the US<br />
<br />
Let's say only 50% have extended stays (over 1 month) in the NICU = 800 babies<br />
<br />
An extended stay can easily cost $1,000,000 (and that is being extremely conservative)<br />
<br />
This would total $800,000,000 in one year...and this is an extremely low number and doesn't account for any of the other 800 babies diagnosed with CDH in a given year. We all know that even a baby that unfortunately looses his/her battle with CDH can fight for 1-2 months and can incur substantial medical bills.<br />
<br />
This cost doesn't take into consideration any of the non-medical bills and expenses associated with an extended stay of a family member in the hospital. So spending $50,000,000 on research that could substantially reduce the $800,000,000 in medical bills in one year alone...seems like a pretty good trade-off to me. <br />
<br />
So what's next? You can follow the <a href="http://www.govtrack.us/congress/bills/112/s3396" target="_blank">progress</a> of the bill as it travels through committee, etc. <br />
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More importantly, you can write you Congressmen. Let them know that you support this bill. That it is important to you and your family. Here's a <a href="http://www.cherubs-cdh.org/bills/" target="_blank">link</a> to help you look up your Congressmen along with a letter template that you can use to craft a letter to send/email to you senators and representative. You can even <a href="http://www.cherubs-cdh.org/bills/" target="_blank">write letters</a> to all the members of the respective committees reviewing the bill to show your support. <br />
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This is a huge opportunity for us to not only raise awareness of CDH but also finally get much needed funding to understand the cause (and hopefully prevent it in the future). Unknownnoreply@blogger.com1