Monday, December 2, 2013

#GivingTuesday is December 3: How are you planning to give back??

Think CHERUBS this #GivingTuesday



Just in case you haven't heard all the fuss over the last few weeks, #GivingTuesday is this Tuesday, December 3.  What is #GivingTuesday?

It is a day created to GIVE BACK.  It's that simple.  We just spent a long weekend focusing on how thankful we are for what we have followed by a couple intense days of shopping.  'Tis the season for giving. So why not give to a charity that has touched us all so deeply.  If you give in any way on December 3, then you have participated in #GivingTuesday.



consider giving to CHERUBS this #GivingTuesday

However, for me, CHERUBS is at the top of the list of charities to consider this 2nd annual #GivingTuesday


So how can you give to CHERUBS??  Here's a quick list of ways you can donate:


  1. Give directly to CHERUBS via the webpage.
  2. Donate via the CHERUBS #GivingTuesday FirstGiving page
  3. Support National Children's Memorial Day and light a virtual candle for CDH babies gone too soon for only $5 per candle.
  4. Purchase the 1st ever CHERUBS lullaby for only $1.89 (or more).  
  5. Shop on Amazon, Ebay, or Goodsearch.
  6. Participate in the CDH Jewelry fundraiser on Etsy from our Oregon State Rep.
  7. Shop the CHERUBS CDH Awareness Shop
  8. Purchase a CDH Awareness 2014 calendar.
  9. Play the Give a Heart game on your computer or mobile device and donate your hearts to CHERUBS.
  10. Sign up to donate a tweet via JustCoz to CHERUBS.
and one more bonus way to donate:

  11.  Check out Kylee's 13th Birthday fundraiser for CDH Research

This is definitely not an exhaustive list, but it's a good start.

Happy Donating!

Tuesday, October 8, 2013

A Fighter's Lullaby - The words you have been waiting for

Some of you have asked about the words to this amazing lullaby after listening to it a couple times.  First of all, thank you for your support in this CDH Research fundraiser. 

This fundraiser is still open, so please don't hesitate to make a minimum donation of $1.89 to get your very own copy of the lullaby.

Here are the words to this beautiful song written by Ross Crean with those affected by CDH in mind:

"A Fighter's Lullaby"
It's all clear now, little one,
Sleep away.
No more fears and disturbia
Will be here to stay.
Let the sky full of stars
Blanket the darkness that gets in your way.
Just hold on to the promises
That tell you to there's soon to be
Much brighter days.
Don't carry your shield and sword
Through those reveries.
Get on the boat, leave them on the shore
While you sail to dream.
Let the sky full of stars
Blanket the darkness that gets in your way.
Just hold on to the promises
That tell you to there's soon to be
Much brighter days.



Interested in "purchasing" this song? Just use the Add to Cart button below.  And remember you are more than welcome to donate more than $1.89 for the lullaby.

Add to Cart View Cart
Shopping Cart by E-junkie

Once you purchase the song, you will have the opportunity to download it right away.  You should also receive a link via email with instruction for downloading.

Thursday, August 29, 2013

CHERUBS Fundraiser - First Ever Original Lullaby Written Just for CHERUBS!


For the first time, CHERUBS has a lullaby written with our cherubs in mind.  A good friend of mine offered to compose and perform an original lullaby for CHERUBS.

The lullaby is amazing and is called "A Fighter's Lullaby".  This is the official announcement of the first ever "A Fighter's Lullaby" CHERUBS fundraiser.

You can purchase the song for only $1.89.  However, you have the opportunity to "pay" more if you would like just by increasing the purchase price at time of checkout.

After PayPal processing fees, all money raised will be donated to either the Family Support Fund at CHERUBS or CDH Research or both depending on how much we raise.

Here's is a sample of this amazing lullaby by Ross Crean (a local Chicago musician).

Add to Cart <== click here to purchase/donate
Shopping Cart by E-junkie

Here's a short note from the composer/artist :

I first became aware of CDH when my friends Neil and Amy Rubenstein's son, Aidan, was diagnosed with the birth defect. Like a great many people, I had no knowledge that something like CDH existed until it happened to someone I knew. Raising awareness is so crucial to helping research, detect, and even one day prevent this condition.

I wrote "A Fighter's Lullaby" with two intentions. ONE, to compose a lullaby to raise money for the CHERUBS organization, and TWO, to send a message of love and support for those heroes who deal every day with the effects of CDH. It is my hope that this song will serve as a message of solace and encouragement, not only to the children who are diagnosed, but also to the parents who soldier bravely through the losses and hardships that it brings. To those who have lost children to CDH, and to those who continue to fight it: may this song be your light in the present darkness, and remind you that even the most difficult struggle always reaches an end. Stay strong!

Copyright 2013 Ross Crean/Knight & Thorne Music/ASCAP. All Rights Reserved.

Interested in "purchasing" this song? Just use the Add to Cart button below.  And remember you are more than welcome to donate more than $1.89 for the lullaby.

Add to Cart View Cart
Shopping Cart by E-junkie

Once you purchase the song, you will have the opportunity to download it right away.  You should also receive a link via email with instruction for downloading.

Tuesday, August 20, 2013

CHERUBS Raffle for Research

Last December we held a Facebook contest and you voted for your favorite Research Center to get a $10,000 CDH Research Grant. We were able to give away 2 grants for $10,000 each thanks to all your help selling 50/50 CDH Raffle tickets and thanks to 1 determined family who raised $10,000 in memory of their daughter! $10,000 went to The Center for Fetal Diagnosis and Treatment at CHOP and $10,000 went to DHREAMS Research Study (Congenital Diaphragmatic Hernia).

THIS YEAR:

Our goal is to sell 1000 more 50/50 CDH Raffle tickets to raise another $10,000 and to work together to raise an additional $15,000 through fundraisers and firstgiving pages. 

Think we can do it? Want to give $25,000 in CDH Research Grants this December? We sure do!!!


HOW YOU CAN HELP:

1. Purchase tickets at http://2014cdhresearchraffleeventbrite.com/

2. Sell paper tickets by e-mailing us your name and address to research@cdhsupport.org

3. Hold a fundraiser by talking to our Fundraising Coordinator Melissa Larrison at mlarrison@cherubs-cdh.org

4. Create a Firstgiving Page in honor/memory of your cherub at https://www.firstgiving.com/10125/cherubs-2013-cdh-research-fund-drive

It's not hard to help! We had several families sell over 50 tickets each and we have had 2 families raise over $10,000 on Firstgiving and one who raised $25,000! If all of us work together on this we can far exceed our goal and raise a lot of money for CDH Research!


For more information:
CHERUBS - Congenital Diaphragmatic Hernia (CDH): CDH Research

Thursday, June 20, 2013

Groupon Grassroots Update & Other Breaking News!

We did amazing with the Groupon Grassroots fundraiser!  Because of your support, we raised over $3,300 towards the HOPE Totebag program.  100% of the money raised goes directly to CHERUBS for this important program.  Thank you for making this fundraiser (the first of it's kind for CHERUBS) such a success.

Did you know that CHERUBS is offering a scholarship towards college for graduating seniors?  There's still time to apply.  The deadline is June 24th, so get your application in soon!

Did you watch the WGN news on Monday, June 17th?  The CHERUBS IL/WI Representative and his family were featured in a cover story which talked about CDH, CHERUBS, and their 2nd child (due in September) also diagnosed with CDH.


Wednesday, June 5, 2013

We're in the home stretch of the Groupon Grassroots Totebag Fundraiser

Just in case you haven't heard, CHERUBS has partnered with Groupon Grassroots to launch a fundraiser to help support the HOPE Totebag program.  These totebags are sent to CHERUBS members who are expecting a child with CDH or with one currently in the NICU.  It includes lots of items and information to help with an extended hospital stay (which unfortunately is very common among children who have CDH).


This fundraiser launched last Thursday (5/30) and runs until Sunday, June 9.  The awesome thing about this fundraiser is that Groupon actually absorbs all fees and transactions costs, so 100% of the money raised goes directly to CHERUBS.   100%!!


Donations can be made in increments of $10 with every 5 donations covering the cost of one bag.  There aren't many easier ways to donate to such a worthwhile cause where 100% of the money raised goes to the chosen charity.

Why am I so passionate about this fundraiser?  Here's a blog post I wrote for my friends at RockScar Love called "Death, you messed with the wrong dad AGAIN"

Please consider making a donation.  Thank you very much.

Here is the link to donate:  http://www.groupon.com/deals/cherubs

Monday, June 3, 2013

President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam

This week CHERUBS President and Founder, Dawn Torrence Williamson, will be speaking to CDH surgeons and researchers at the International CDH Workshop at Sophia Children's Hospital in Rotterdam, Holland.   An event to showcase the latest in Congenital Diaphragmatic Hernia Research and results from the CDH Study Group, this is a wonderful opportunity for the world's largest CDH charity to share our information and services and to learn how we can better work with researchers worldwide


CHERUBS - Congenital Diaphragmatic Hernia (CDH): President Dawn Torrence Williamson, Represents CHERUBS at International CDH Workshop in Rotterdam

Thursday, May 23, 2013

CHERUBS 2013 CDH Scholarships


Two $1000 scholarships will be awarded this year in memory of cherub Oz Kidd-Ward.


Applications are accepted each year between March 1 and June 24th and must be accompanied by the following applicable items:

·      High school transcript(s) or Recent Report Card with GPA
·      College Acceptance Letter(s)
·      Two letters of recommendation.  Letters must be dated within the last three months.

Rewards are granted on merit without regard to race, religion, creed, sex, national origin or disability status.  All applicants must be a current member of CHERUBS or have a parent that is a registered member of CHERUBS.  The CHERUBS CDH Scholarship is not available to children of members on the CHERUBS Executive Board or the CHERUBS Parent Advisory Board (CPAB).  Winner(s) will be announced at the International Congenital Diaphragmatic Hernia Conference on Wednesday, July 10, 2013, in Boston, MA



For more information:
CHERUBS - Congenital Diaphragmatic Hernia (CDH): CHERUBS 2013 CDH Scholarships

Friday, May 17, 2013

CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative




CHERUBS Partners with Groupon Grassroots for the HOPE Totebag Initiative
to provide totebag care packages to families either expecting a child with a congenital diaphragmatic hernia (CDH) or currently have a child in the hospital with CDH.

Chicago, IL – Today CHERUBS and Groupon Grassroots (http://grassroots.groupon.com), the philanthropic arm of Groupon, announce the launch of a local campaign to raise much needed funds to support the HOPE Totebag project.

The HOPE Totebag campaign will be available on the Chicago, IL Groupon Grassroots page beginning on 30, May and running through 9, June. Utilizing Groupon Grassroots’ collective action model, Groupon subscribers can pledge support for the Hope Totebag initiative in increments of $10, with each $50 covering the cost of the totebag care package for 1 family. 

“We’re excited to leverage the collective action model of Groupon Grassroots to raise support for the HOPE Totebag project,” said Neil Rubenstein, Illinois Rep for CHERUBS. “We look forward to creating new awareness for CHERUBS as one of the local organizations in Chicago to be featured on Groupon Grassroots.”

One hundred percent of the Groupon Grassroots campaign proceeds will be used to provide much needed funding to keep this project going.  It costs CHERUBS approximately $50 in product and postage to mail each totebag.  Typically, CHERUBS mails about 30 totebags per month.  The totebags contains items such as blankets, disposable camera, gas cards, and other welcome items that parents often don’t think about before a lengthy NICU stay.  CDH babies can be hospitalized in the NICU for 6 months or longer.

CHERUBS currently has over 4,200 members in all 50 states and in over 60 countries.  1 in every 2500 pregnancies results in a CDH diagnosis.  Unfortunately, there are over 52,000 children diagnosed with CDH every year around the world.  There is only a 50% survival rate for children born with this birth defect.  
###
About CHERUBS
CHERUBS is the world's first, oldest, and largest CDH non-profit organization.  CHERUBS is truly a grassroots organization - CDH families creating something out of nothing when there was no other CDH group, information and services in 1995.  CHERUBS was created to make sure that no family endures Congenital Diaphragmatic Hernia without support or accurate information.  For more information on CHERUBS, visit http://www.cherubs-cdh.org

About Groupon Grassroots
Groupon Grassroots, launched in July 2010 in Chicago as G-Team, features local campaigns nationwide, enabling Groupon followers to do good, have fun, and make a real impact in their communities. Groupon Grassroots uses collective action to gather support for worthwhile causes and produce tangible results for local organizations. To learn more about Groupon Grassroots and how to become a featured organization, visit http://grassroots.groupon.com. To subscribe to Groupon, visit http://www.groupon.com.

Press Contacts:
CHERUBS
Neil Rubenstein
847.530.6070
Groupon
Erin Yeager
312.999.3434

Friday, April 12, 2013

U.S. House of Representatives Introduces Resolution for CDH Awareness Month


H. Res 144 that was introduced this week in the United States House of Representatives to make April, 2013 "National Congenital Diaphragmatic Hernia Awareness Month" by Rep. Martha Roby (R-AL) and co-sponsored by Rep. George Holding (R-NC). 

A companion bill was passed unanimously in the Senate on March 20, 2013 - S. Res. 85 which was sponsored by Senator Jeff Sessions (R-AL) and co-sponsored by Senator Ben Cardin (D-MD).

Congenital Diaphragmatic Hernia (CDH) affects 1600 babies a year in the United States, taking the lives of 800 children.  CDH occurs when the diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. The cause is unknown.  There is no awareness and very little research funding.  


CHERUBS - Congenital Diaphragmatic Hernia (CDH): U.S. House of Representatives Introduces Resolution for CDH Awareness Month


Tuesday, April 9, 2013

April 19th 2013 Chicago Parade of Cherubs Press Release


SUMMARY:
Chicago, IL - CHERUBS, a non-profit organization, worked with Senators Jefferson Sessions (R-AL) and Benjamin Cardin (D-MD) to gain national awareness for the birth defect, Congenital Diaphragmatic Hernia, through Senate  Resolution 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.

A local “Parade of Cherubs” awareness event will be held on April 19th to benefit national charity CHERUBS and research at Lurie Children's Hospital of Chicago.

Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity, and preventing lung growth. It affects 1 in every 2,500 babies, representing approximately 1,600 babies in the United States each year, half of which do not survive.

PRESS RELEASE: Grassroots Parent Group Works With Senator Sessions to Raise Awareness with Unanimous Senate Passing of April, 2013 “Congenital Diaphragmatic Hernia Month” Resolution

FOR IMMEDIATE RELEASE
Media Contact:
Neil Rubenstein
847.530.6070
illinois@cherubs-cdh.org

Chicago, IL (April 8, 2013) – On March 26, 2013, U.S. Senators Jeff Sessions (R-AL) and Ben Cardin (D-MD) introduced Senate Resolution 85.

U.S. Sen. Jeff Sessions (R-AL), along with his colleague Sen. Ben Cardin (D-MD), issued the following statement on March 22nd after the unanimous approval of Senate Resolution 85, designating April 2013 as Congenital Diaphragmatic Hernia (CDH) Month:

“I am pleased that the Senate has unanimously declared April 2013 as National Congenital Diaphragmatic Hernia Awareness month. By joining together, we can help raise awareness of this serious birth defect. Early detection, good prenatal care, and awareness are vital for the survival, and healthy future, of the children born with this defect.”

On Friday, April 19th, U.S. Senator Jeff Sessions (R-AL) will meet with families affected by Congenital Diaphragmatic Hernia who are participating in a “Parade of Cherubs” in Washington, DC, to raise awareness of the deadly birth defect. Sen. Sessions’ three-year old grandson, Jim Beau, is a CDH survivor. In Jim Beau’s honor, the Senator’s family will take part in the event, and Sen. Sessions is requesting a Congressional Bill for the benefit of Congenital Diaphragmatic Hernia Research.

Families will also meet with members of the House of Representatives on April 18th, which will be followed by a reception that evening on Capitol Hill to celebrate the passing of the Resolution in the Senate.

“CDH awareness and research is very important and especially to me because my grandson, Jim Beau, was born with CDH in 2009,” said Senator Sessions. “This is a life threatening birth defect that not many people have heard about. Only 50 percent of the babies survive and that number could and should be higher. Research and awareness are key and we are excited that CHERUBS chose to parade in DC this year.” said Senator Sessions at last year’s event in Washington, DC.

CDH occurs when the diaphragm fails to form or to close totally and the opening allows abdominal organs into the chest cavity, inhibiting lung growth. CDH affects approximately one in every 2,500 babies, or about 1,600 babies in the United States each year. It is as common as cystic fibrosis and spina bifida. Roughly 50 percent of babies born with CDH do not survive. The cause is still unknown.

The parade has been organized through CHERUBS, a North-Carolina based grassroots nonprofit organization started by Dawn Williamson whose son, Shane, died in 1999 at the age of six from CDH complications. Children donned in wings will begin the three-mile walk at 11:00 a.m. at the Lincoln Memorial; they will travel past the Washington Monument and the White House, and conclude at the U.S. Capitol Building.

“We are thrilled to have so many survivors and families affected by CDH as well as the medical community come out to support the cause,” said Dawn Williamson, president and founder of CHERUBS. “Not only are we celebrating the passing of this very important Senate Resolution for CDH awareness but our members have been gathering Proclamations from Governors and Mayors around the country as well to help raise awareness on a local level.”

CHERUBS is working with Ann & Robert H. Lurie Children's Hospital of Chicago to put on the Chicago Parade of Cherubs on April 19th. The Illinois Representative for CHERUBS, Neil Rubenstein, is organizing the Chicago Parade. Starting at 11:00 a.m., participants will take part in a balloon launch at Childerley Park in Wheeling to pay respect to all those CHERUBS lost. Then they will walk 2.5 miles through Wheeling and Buffalo Grove to help raise awareness of CDH. Close to 70 people (from four states) are expected to participate in this awareness & fundraising event.

“Join us after the parade at Lou Malnati's in Buffalo Grove for lunch and help us Pack Potbelly's in Wheeling to raise additional money towards CDH research (from 3pm - 6 pm on April 19th as well)” invites Rubenstein.

50% of the money raised will stay local and be donated to Lurie Children's Hospital of Chicago.

Several cities across the U.S. are also hosting “Parades of CHERUBS” on the same weekend including, Washington DC, New York, Chicago, Denver, Seattle, Dallas, Peoria, Portland, Salt Lake City, Phoenix, St. Louis and Philadelphia. In addition to the parades, there will be a CDH Baseball Night with the Las Vegas 51’s, a Sky Dive Fundraiser in Shropshire, UK, and both the CN Tower in Toronto, Ontario, Canada and City Hall in Dublin, Ireland, will be lighting up for CDH Awareness. Many families will also be holding fundraisers and awareness events in honor or in memory of their children born with CDH. A virtual Parade of Cherubs has been set up on Facebook and Twitter so people can show their support by uploading photos and videos.

April 19th is recognized as the International Day of Congenital Diaphragmatic Hernia Awareness by families in 60 countries.

Shands for Children at the University of Florida in Gainesville, DHREAMS CDH Genetic Lab at Columbia Presbyterian Hospital, the Congenital Diaphragmatic Hernia (CDH) Genetic Research Study at Massachusetts General, the St. Louis Fetal Care Institute, and The Center for Fetal Diagnosis and Treatment at CHOP have all been integral in raising CDH Awareness this year by sponsoring or assisting with Parades of CHERUBS at their respective hospitals.

A Virtual Parade of Cherubs will include 100's of CDH families submitting stories, photos and video over social media. More information can be found at https://www.facebook.com/cdhsupport.

If you would like to help spread the word, or to learn more about CHERUBS and the upcoming parades, please visit
www.cdhawarenessday.org

###
Additional Information:
Senate Resolution - http://www.govtrack.us/congress/bills/113/sres85
CHERUBS – http://www.cdhawarenessday.org/

Monday, March 25, 2013

Everything you need to know...

...About the Chicago Parade of Cherubs on April 19th:

  1. Deadline for purchasing your shirts is March 31st if you want to receive it at the parade.
  2. You can register using the same links above up until the day of the event.  If you use FirstGiving to register, please join the Chicago team (after you register).
  3. If you are planning to attend the Lou Malnatis (all you eat pizza/soda) lunch after the parade, I need to know ASAP.  Adults are $12 and children are $7.50.  If we don't have enough people signed up, I have to cancel the reserved room.  We can still do lunch, but it won't be all you can eat.  I need to need by March 31st if you are planning to come to the lunch.
Day of Schedule <== click link to download schedule

11:00 a.m. – Arrive at Childerley Park  – 506 McHenry Rd , Wheeling, IL
11:15 a.m. – Moment of silence to remember those CHERUBS lost
11:20 a.m. – Balloon launch
11:30 a.m. – Wrap up pictures and begin march/parade (2.5 miles)
12:30 p.m. – Finish march back at Childerley Park
1:00 p.m. – Drive to Lou Malnati’s (about ½ mile from park) for Lunch  
85 South Buffalo Grove Road ($12 per adult, $7.50 per child)
2:00 p.m. – Good-byes??
3:00 p.m. – 6:00p.m. – Pack Potbelly’s Fundraiser - 1520 E Lake Cook Rd, Wheeling (no flyer needed) – 25% of sales donated to CHERUBS


Sunday, March 24, 2013

S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.


On March 20, 2013 Senator Jeff Sessions (R-AL), along with Co-Sponsor Senator Ben Cardin (D-MD) introduced  S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.

On March 20, 2013 it was passed.

The United States Senate has officially designated April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.


This is an incredible victory for our cause in the battle against CDH and today, we celebrate!  

This resolution not only asks for awareness for an entire month but for research as well.   A press release and full text will be posted soon.

Even as we celebrate, the war is not yet over.  We are now rallying the troops to introduce and pass a resolution in the United States House of Representatives as well for CDH Awareness and also for Research.  

We also continue to gather proclamations from cities and states for more local awareness. 

The Parades of Cherubs across the country will now turn into celebrations also.

The Washington DC Parade of Cherubs has now changed focus from the Senate to the House as we march on Capitol Hill.

We ask our members and supporters to continue to push to raise more CDH Awareness, to join in and celebrate with us on April 19th by marching in a Parade of Cherubs, joining an event or participating in the Virtual Parade of Cherubs on-line.  


This achievement has been many, many years in the making but it could not have been done without the support of our members, other CDH charities, all those who signed the petitions and all those who never gave up.   Our deepest, sincerest gratitude goes out Senator Sessions and his family for without their cherub, Jim Beau, and their amazing support none of this would be possible.



CHERUBS - Congenital Diaphragmatic Hernia (CDH): S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.

Monday, March 11, 2013

CHERUBS - Chicago Parade of Cherubs on April 19th!


Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!

Chicago, IL Parade

    Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
    50% of money raised will be donated to Lurie Children's Hospital of Chicago (formerly Children's Memorial) for CDH Research
    Contact Neil Rubenstein with any questions about this event at illinois@cherubs-cdh.org


CHERUBS - Congenital Diaphragmatic Hernia (CDH): Chicago Parade of Cherubs on April 19th!

Monday, February 11, 2013

So much CDH Awareness Going On!

There so much going on in Illinois with respect to CDH awareness and around the world, I almost don't know where to start.

But first and foremost is our petition to get the +The White House (@WhiteHouse on twitter) to light up in the colors of CHERUBS on April 19th...the International Day of Congenital Diaphragmatic Hernia Awareness.  We need to get 100,000 signatures in just 30 days to even be considered by the administration...so we have our work cut out for us.  Just go to www.cdhawarenessday.com to sign the petition.


We have a lot of fundraisers in the Chicago area leading up to the Chicago and Peoria parades on April 19th.  This year any money raised (individual donations and corporate sponsors) before April 19th will be split between Ann & Robert H. Lurie Children's Hospital of Chicago and +CHERUBS in the Chicago area.  In the Peoria area, the funds raised will be split with OSF Saint Francis Medical Center.

To sign up for either the Chicago or Peoria parades, please register via FirstGiving.  Once you sign-up, join either the Chicago or Peoria team.  You can also set up your own FirstGiving page to fundraise in your child's honor or memory.  We will be using the same shirt this year for all the parades around the country with 50% of the t-shirt proceeds being donated back to the respective local hospital.  You can purchase your t-shirt when you register via FirstGiving.  For more up to date information, see the Peoria Facebook event or Chicago Facebook event.  

Donations will also be accepted on April 19th at either parade.  If you are interested in making a corporate donation, sponsorship levels are listed on the FirstGiving page or you can email me at nrubenstein@cherubs-cdh.org.  You can get your company name on the back of the shirt that will be used for all US and Canadian events for as little as a $100 donation.  And for $200, you can include you literature in the Chicago Parade participant bag. 

I am also looking for a corporate sponsor for a fundraising program for as little as $500.  This program will be launched in Chicago but will have international exposure.  Email me for details: nrubenstein@cherubs-cdh.org

Other Chicago area fundraisers:

  

Wednesday, January 2, 2013

CHERUBS 2012 Milestones and Accomplishments for Congenital Diaphragmatic Hernia


As we wrap up 2012 and welcome 2013, our charity would like to thank all of the members, donors and friends who make it possible for us to help families affected by Congenital Diaphragmatic Hernia.

We are very proud of our accomplishments this year and look forward to many more in the upcoming year!

CHERUBS 2012 Milestones and Accomplishments (so far):

  * New Executive Board of Directors
  * New Parent Advisory Board
  * New Medical Advisory Board
  * New Vice-President, Ashley Barry
  * New Secretary, Lauren Campbell
  * New Treasurer, Kelly Green-Krist
  * Senate Bill S.3396 Introduced
  * Parade of Cherubs on April 19th in Washington DC to Capitol Hill
  * Members met with the offices of over 25 Senators
  * April 19th CDH
  * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria
  * UK Light up The Night on April 19th
  * First ever Virtual CDH Awareness Parade on April 19th  * 2012 CDH Conference in San Francisco
  * New CHERUBS Web Site
  * New Logo
  * New Facebook Forums Application created
  * $10,000 CDH Research Grant contest started (ends December 30th)
  * $10,000 CDH Research Grant awarded to ______________ on December 30th (by votes)
  * Another $10,000 CDH Research Grant awarded to ______________ on December 30th (already chosen)
  * First ever Facebook Grant Contest held by a CDH charity
  * Over 300 care packages sent to families through our CDH HOPE Totebag project
  * CDH families represented at the American Pediatric Surgical Association conference
  * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs
  * Texas Get-Together
  * Ohio Picnic
  * UK Get-Together in Scotland
  * Chicago CDH Carnival  * Pennsylvania / NJ / Delaware Picnic
  * Denver Picnic
  * Indiana Get-Together
  * Washington Zoo Trip
  * Oregon members met with Senators
  * Oregon members represent CDH families at the opening of Randall Children's Hospital
  * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research
  * Over 10,000 Facebook Fans reached
  * Over 10,000 signatures reached on CDH Research Bill petition
  * Over 18,000 people reached in one post on Facebook
  * 2012 Silver Lining Newsletter Published
  * 2012 CDH Awareness Video
  * Day of 2012 CDH Awareness Video
  * Participated in televised Raleigh Christmas Parade
  * CHERUBS members in Claremont, NC Christmas Parade
  * CHERUBS members in Snoqualmie Days Parade
  * It's a Knock-Out UK Fundraiser
  * Masquerading Angels Ball
  * UK Formal Ball
  * CDH Awareness Calendar featuring over 1300 CDH patients
  * Save the Cherubs CDH Awareness Calendar
  * First CDH Awareness Calendar in the United Kingdom
  * Won Shane Co. charity contest
  * Won the JuJuBelle Facebook contest
  * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital
  * Washington Mud Run Fundraiser
  * Enter Stage Left Fundraiser  * UK Fishing Competition Fundraiser
  * Rockin' for Aidan Fundraiser
  * CHERUBS joins Google+
  * CHERUBS joins Chirpify
  * CHERUBS joins Pinterest
  * CHERUBS joins Instagram
  * CDH Fundraising Kits created
  * Cooking With Cherubs cookbook project begun
  * Participated in the San Francisco Marathon
  * Participated in the Boston Marathon
  * Participated in the Baltimore Marathon
  * Participated in the Great Human Race in Durham, NC
  * Participated in the Iron Girl all women's half Marathon in the Mid-Atlantic
  * Participated in the Baltimore, MD Metric Marathon
  * Participated in the High Cloud Snapple Half Marathon in Washington, DC
  * Save The Cherubs in the Silicon Valley
  * New Holiday Facebook Covers project started
  * Dozens of free CDH Awareness graphics made
  * New yellow CDH Awareness Bracelets created
  * 47 members of the Angel Club
  * Over 100 new Save the Cherubs posters created
  * Membership reaches over 4200 families in 54 states
  * CHERUBS moves to new office
  * 5 television interviews
  * Over 2 dozen newspaper articles
  * 1 magazine article
  * Moved to new office

Be sure to check out the main CHERUBS blog for more great pictures of our 2012 accomplishments.