Did that get your attention?? Okay...well I exaggerated a bit. It's not really a call to arms but rather a call to volunteer. Many of you may know that I wear a lot of hats in an effort to help CHERUBS. I am currently the Illinois and Wisconsin State Rep and on the Awareness, Grant, and Welcome Committees. I am also one of the Co-Chairs of the newly formed Parent Advisory Board.
So how can you help? We can always use help on the committees I mentioned above. But where we really need help (and I'm talking about Illinois and Wisconsin specifically here) is in the Hospital Angel role. What is a Hospital Angel? It is someone who has knowledge of a specific hospital and is willing (as needed) to speak to members about that hospital or possibly even visit someone with a child currently at that respective hospital.
This is an on-call position, so it does not require a lot of hours. However, it is an extremely important role. I think we all can remember all the questions swirling around our heads when we found out we were going to have a child with CDH.
But between Illinois and Wisconsin there are way too many hospitals for one person to cover. Plus I only have experience with two hospitals with respect to my CDH-er.
I know just from the Chicago Parade of Cherubs on April 19, we had a dozen hospitals represented. If you are interested in becoming a Hospital Angel or taking on any of the other important volunteer roles, please let me know. Thanks for taking the time to consider volunteering. CHERUBS is primarily a volunteer run organization. So without our volunteers, we wouldn't be able to offer half the services currently being offered.
Here is a direct link to a brief description of the volunteer roles currently available.
The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. CHERUBS is the original CDH non-profit organization founded in 1995 to help families and medical care providers of children born with CDH.
Showing posts with label parent advisory board. Show all posts
Showing posts with label parent advisory board. Show all posts
Saturday, July 7, 2012
Tuesday, June 26, 2012
CHERUBS Creates New Parent Advisory Board To Help Govern Charity
In 2012, we are completely restructuring CHERUBS to go from a small "mom and pop" charity that offers mostly support services to families to a much, much larger, more professional non-profit organization that can fund larger projects, fund more research, raise more awareness and provide more services to families.
One of the steps we are taking to do this is restructuring our Board into 3 new Boards; Executive Board of Directors, Medical Advisory Board and Parent Advisory Board.
Meet Our New 2012 CHERUBS Parent Advisory Board!
The purpose of the Parent Advisory Board is to oversee all of our support services, help us to delegate responsibilities and fill volunteer positions, deal with member conflict, process new ideas, handle suggestions and complaints and be the professional "face" of CHERUBS in social media.
This position has a 1 year term beginning annually on June 1st. The first CPAB was appointed for 2012. The first election will be held on May 1, 2013. Members can serve up to 5 terms in a row if elected. Members can run for reelection, nominate themselves or others, and it is up to each member whether or not to accept a nomination. Our goal with elections is to keep active members on this Board and give the membership more of a say so in the leadership of our charity.
All members of this Board will serve 1-5 years except for the Volunteer Coordinator, who will Co-Chair this Board for unlimited terms with a fellow 1-yr-term Co-Chair chosen annually by the Board of Directors. The Co-Chairs are responsible for overseeing the duties of the Parent Advisory Board and Volunteers. They will both report back to the Board of Directors quarterly.
The Board of Directors will be the business end of CHERUBS. The Parent Advisory Board will be the heart and soul of our CHERUBS team. This is a very important Board with very important roles that these members do not take lightly.
You can send your comments, questions, concerns and other correspondance to the new Parent Advisory Board at cpab@cherubs-cdh.org.
To read the bios of all volunteers (including your Illinois Rep) on the new Parent Advisory Board, check out this Facebook post.
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