Monday, March 25, 2013

Everything you need to know...

...About the Chicago Parade of Cherubs on April 19th:

  1. Deadline for purchasing your shirts is March 31st if you want to receive it at the parade.
  2. You can register using the same links above up until the day of the event.  If you use FirstGiving to register, please join the Chicago team (after you register).
  3. If you are planning to attend the Lou Malnatis (all you eat pizza/soda) lunch after the parade, I need to know ASAP.  Adults are $12 and children are $7.50.  If we don't have enough people signed up, I have to cancel the reserved room.  We can still do lunch, but it won't be all you can eat.  I need to need by March 31st if you are planning to come to the lunch.
Day of Schedule <== click link to download schedule

11:00 a.m. – Arrive at Childerley Park  – 506 McHenry Rd , Wheeling, IL
11:15 a.m. – Moment of silence to remember those CHERUBS lost
11:20 a.m. – Balloon launch
11:30 a.m. – Wrap up pictures and begin march/parade (2.5 miles)
12:30 p.m. – Finish march back at Childerley Park
1:00 p.m. – Drive to Lou Malnati’s (about ½ mile from park) for Lunch  
85 South Buffalo Grove Road ($12 per adult, $7.50 per child)
2:00 p.m. – Good-byes??
3:00 p.m. – 6:00p.m. – Pack Potbelly’s Fundraiser - 1520 E Lake Cook Rd, Wheeling (no flyer needed) – 25% of sales donated to CHERUBS


Sunday, March 24, 2013

S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.


On March 20, 2013 Senator Jeff Sessions (R-AL), along with Co-Sponsor Senator Ben Cardin (D-MD) introduced  S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.

On March 20, 2013 it was passed.

The United States Senate has officially designated April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.


This is an incredible victory for our cause in the battle against CDH and today, we celebrate!  

This resolution not only asks for awareness for an entire month but for research as well.   A press release and full text will be posted soon.

Even as we celebrate, the war is not yet over.  We are now rallying the troops to introduce and pass a resolution in the United States House of Representatives as well for CDH Awareness and also for Research.  

We also continue to gather proclamations from cities and states for more local awareness. 

The Parades of Cherubs across the country will now turn into celebrations also.

The Washington DC Parade of Cherubs has now changed focus from the Senate to the House as we march on Capitol Hill.

We ask our members and supporters to continue to push to raise more CDH Awareness, to join in and celebrate with us on April 19th by marching in a Parade of Cherubs, joining an event or participating in the Virtual Parade of Cherubs on-line.  


This achievement has been many, many years in the making but it could not have been done without the support of our members, other CDH charities, all those who signed the petitions and all those who never gave up.   Our deepest, sincerest gratitude goes out Senator Sessions and his family for without their cherub, Jim Beau, and their amazing support none of this would be possible.



CHERUBS - Congenital Diaphragmatic Hernia (CDH): S.Res. 85: A resolution designating April 2013 as “National Congenital Diaphragmatic Hernia Awareness Month”.

Monday, March 11, 2013

CHERUBS - Chicago Parade of Cherubs on April 19th!


Join us for April 19th, the International Day of Congenital Diaphragmatic Hernia Awareness!!!!

Chicago, IL Parade

    Set up your own Team Member page on Firstgiving - https://www.firstgiving.com/10125/cdhawarenessday2013
    50% of money raised will be donated to Lurie Children's Hospital of Chicago (formerly Children's Memorial) for CDH Research
    Contact Neil Rubenstein with any questions about this event at illinois@cherubs-cdh.org


CHERUBS - Congenital Diaphragmatic Hernia (CDH): Chicago Parade of Cherubs on April 19th!